Join Cure JM and receive invitations to our monthly Town Halls.
Our monthly Town Halls provide an open forum to let your voice be heard! We provide a platform for dialogue between families and JM experts on topics important to you. By joining, you will connect with leading physicians and researchers on breaking updates, hear inspiring patient stories, and learn about new programs. The Town Hall is your direct link to connecting and participating in the programs that are driving our mission forward! Join us today to be a force in our progress.
Hear from various speakers on topics of interest to Cure JM families, including information on the JDM basics, new treatments, the latest research updates, and other support for JM families.
Join us Thursday, April 24th at 8:00 PM Eastern for a powerful and practical Town Hall event with Ronda Thorington, MA, LPC, a Licensed Professional Counselor and Parent Coach specializing in supporting families facing medical uncertainty. The evening will include a guided Introduction to the Resilient Parent Toolkit with practical strategies to manage stress and foster deeper family connections, actionable tools for weekly resilience planning, medical appointment prep, and self-care. This Town Hall will be a supportive space to ask questions, share experiences, and find encouragement. If you’re a parent or caregiver seeking practical, compassionate guidance, this Town Hall is for you. Register today and take the first step toward resilience!
Ronda Thorington, MA is a Licensed Professional Counselor (LPC) with over 20 years of providing mental health treatment to children, families and adults through her private practice in Connecticut.
Join us Thursday, May 5th at 2:00 PM Eastern for an informative Cure JM Town Hall with Dr. Kaveh Ardalan. He will provide insight into the art and science of tapering. Tapering or weaning off of medications is a critical part of managing Juvenile Myositis (JDM). This session will provide insights into the process of reducing or discontinuing treatments like steroids, methotrexate, IVIG, and other common medications used in JDM care. This session is designed to empower families with knowledge about tapering medications, fostering collaboration with their care team to make informed decisions tailored to each child’s unique needs.
Join us Wednesday, June 4th at 2:00 PM Eastern for a special Cure JM Town Hall featuring Dr. Stacey Tarvin. This will serve as an essential introduction to juvenile dermatomyositis for families navigating a new diagnosis and will provide clear, compassionate guidance on managing treatments, and finding support. For families already on the JM journey, JM 101 will also cover the latest treatment protocols, best practices, and groundbreaking research shaping the future of care. Whether you’re newly diagnosed or looking for critical updates, this Town Hall is your chance to gain expert insights and connect with the Cure JM community.
Hear a Critical Update from our Executive Director and learn more about WHY and HOW we Walk Strong Together. Featuring Cure JM Executive Director, Jim Minow, Director of Development and Community Engagement, Shannon Malloy, Board Member and Southern California Walk Chair, Zack Harrison, and Chapter & Walk Manager, Nicole Ryba.
In February, Dr. Turnier and Dr. Sabbagh presented an informational Town Hall for JM families. Catch It Early, Control It Faster: Discover expert tips for
Join us as we hear from Jim Minow, Dr. Andrew Heaton, and Shannon Malloy as we start a new year; a brighter future emerges for
Join us in hearing from Dr. Turnier and Dr. Neely as they dive into the cutting-edge world of cellular research, where breakthroughs are paving the
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