The Importance of Exercise in Juvenile Myositis

This presentation features Sue Maillard, a specialist physiotherapist at Great Ormond Street Hospital, London, who explores the importance of different types of exercise in managing juvenile myositis (JM).

With over 30 years of experience in Pediatric Rheumatology Physiotherapy, Sue has a specialist interest in JM and has completed research on the safety of exercise in juvenile dermatomyositis (JDM).

Sue currently leads a physiotherapy team that provides an inpatient rehabilitation program for children and reviews and manages home treatment programs.

Alexandra’s Story

Alexandra grew up in Philadelphia. At eight years old, she was diagnosed with juvenile dermatomyositis. Her first symptom was pain in her cuticles whenever she

Rebecca Karsten, Why I Fundraise, Ellory, Giving Tuesday 2024

Why I Fundraise

Rebecca Karsten– “Hello! Welcome to a wonderful community that even though we never wanted to join; we are now so happy to be part of.

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