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The Importance of Exercise in Juvenile Myositis

This presentation features Sue Maillard, a specialist physiotherapist at Great Ormond Street Hospital, London, who explores the importance of different types of exercise in managing juvenile myositis (JM).

With over 30 years of experience in Pediatric Rheumatology Physiotherapy, Sue has a specialist interest in JM and has completed research on the safety of exercise in juvenile dermatomyositis (JDM).

Sue currently leads a physiotherapy team that provides an inpatient rehabilitation program for children and reviews and manages home treatment programs.

Natalia in her Team Natalia Shirt

Natalia’s Story

Natalia is seven years old, and in January 2021, she began experiencing pain. Everyday tasks were difficult. Natalia’s parents, Lindsay and Matt, reached out to

Photo of Mark Zuckerberg and Priscilla

Cure JM Research Consortium Receives Prestigious Chan Zuckerberg Grant

The Chan Zuckerberg Initiative has awarded Cure JM and a consortium of Cure JM-funded researchers a coveted $2 million rare disease research grant to identify new biomarkers in JM and improve precise, personalized care through the identification of cell-to-cell interactions that drive inflammation in juvenile myositis.

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