The number of medications used to manage juvenile myositis and its side effects can be overwhelming. To help you stay organized, Cure JM has developed this sample medication chart.
The chart is in Microsoft Word format, so you can customize it to fit your specific needs.
Austin Krainz, diagnosed with juvenile dermatomyositis at the age of seven, overcame the challenges of a rare disease with the support of his family and pioneering treatment from Dr. Lauren Pachman. After more than a decade of battling the illness, Austin entered remission, fulfilling his childhood dream of professional racing in Porsche’s GT America series.
One of the ways you can help your children cope with juvenile myositis is by giving them a sense of control over their doctor visits and treatments.
One such alliance in the Seattle area is that of the Shevlin and Smiddy families. These two families have come together to host community events that make Cure JM’s crucial work possible. Their approach has been to keep it simple with a “yard sale” yet, the event has become a staple in their community and a way for JM and families and friends to stay connected year after year.
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.