Regional & Virtual Events
We are excited to share upcoming regional and virtual community events that support our mission.
This page is your single stop for “being in the know” on upcoming regional events, online patient and family support meetings, and educational symposiums happening in person and online.
Join us in connecting with other families!
Virtual Event
Dad's Connect
Join us for an empowering Dads’ Connect call, a dedicated space where fathers of children with rare diseases can come together, share their experiences, and support one another.
This call is an opportunity to connect with other dads who understand the unique challenges and triumphs that come with caring for a child with a rare condition.
Whether you’re seeking advice, offering your own insights, or simply looking to connect with others who “get it,” this is a safe and supportive environment for you. Let’s come together to share strength, stories, and strategies for navigating this journey.
Virtual Town Hall
Looking Ahead to 2025: A Year of Hope, Progress, and Advancement for Cure JM
Join us as we hear from Jim Minow, Dr. Andrew Heaton, and Shannon Malloy as we start a new year; a brighter future emerges for Cure JM, thanks to the unwavering dedication of our incredible community. Your extraordinary commitment to funding groundbreaking research continues to drive us forward. Join us in celebrating the strides we’ve made together and explore the remarkable impact of your support. Together, we’ll set our sights on even more remarkable achievements in the coming year. Here’s to a future filled with hope, progress, and continued success toward better treatments and a cure.
Virtual Event
Grandparent Council
We invite you to join our next Grandparent Council meeting on Thursday, January 23, 2025.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
In-Person Regional Event
Cure JM Family Day - Southern California
The Cure JM Regional Family Day – Southern California is a fun and educational event where you will learn about current juvenile myositis research and best practices from the Cure JM Clinical Care Network doctors and other esteemed doctors. You can ask the doctors questions and meet other Cure JM families.
There will be separate fun and supervised activities for kids and a teen’s room while parents, grandparents, and other adult family members are with the doctors. There will be time to connect with doctors and other families, and a social event will follow for those who can stay.
A detailed agenda and location specifics will be available soon.
Virtual Event
Advocates Council
Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.
Virtual Town Hall
Mastering Early JDM Flare Detection for Better Outcomes
Join us as we hear from Dr. Turnier and Dr. Sabbagh. Catch It Early, Control It Faster: Discover expert tips for spotting and navigating Juvenile Dermatomyositis (JDM) flares for better control and brighter outcomes.
Virtual Event
Grandparent Council
We invite you to join our next Grandparent Council meeting on Thursday, February 27, 2025.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Virtual Event
Grandparent Council
We invite you to join our next Grandparent Council meeting on Thursday, March 27, 2025.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Virtual Event
Dad's Connect
Join us for an empowering Dads’ Connect call, a dedicated space where fathers of children with rare diseases can come together, share their experiences, and support one another.
This call is an opportunity to connect with other dads who understand the unique challenges and triumphs that come with caring for a child with a rare condition.
Whether you’re seeking advice, offering your own insights, or simply looking to connect with others who “get it,” this is a safe and supportive environment for you. Let’s come together to share strength, stories, and strategies for navigating this journey.
Virtual Event
Grandparent Council
We invite you to join our next Grandparent Council meeting on Thursday, April 24, 2025.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Virtual Event
Advocates Council
Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.
Virtual Event
Grandparent Council
We invite you to join our next Grandparent Council meeting on Thursday, May 22, 2025.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Virtual Event
Dad's Connect
Join us for an empowering Dads’ Connect call, a dedicated space where fathers of children with rare diseases can come together, share their experiences, and support one another.
This call is an opportunity to connect with other dads who understand the unique challenges and triumphs that come with caring for a child with a rare condition.
Whether you’re seeking advice, offering your own insights, or simply looking to connect with others who “get it,” this is a safe and supportive environment for you. Let’s come together to share strength, stories, and strategies for navigating this journey.
Virtual Event
Advocates Council
Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.