Regional & Virtual Events
We are excited to share upcoming regional and virtual community events that support our mission.
This page is your single stop for “being in the know” on upcoming regional events, online patient and family support meetings, and educational symposiums happening in person and online.
Join us in connecting with other families!
Virtual Event
Advocates Council
Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.
Virtual Event
Grandparent Alliance
We invite you to join our next Grandparent Alliance meeting on Thursday, February 27, 2025.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Virtual Town Hall
Walk Strong 2025 Kickoff Town Hall
Join us as we kick off Walk Strong 2025 with a special Town Hall. This is your opportunity to find out how you can get involved, raise funds, and make a meaningful impact in the fight against juvenile myositis. Whether you’re walking solo or with a team, you’ll hear from inspiring community members, get helpful fundraising tips, and learn how your participation is driving us closer to a cure. Plus we’ll have a live Q&A, so bring your questions and ideas.
Virtual Event
Grandparent Alliance
We invite you to join our next Grandparent Alliance meeting on Thursday, March 27, 2025.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Virtual Event
Dad's Connect
Join us for an empowering Dads’ Connect call, a dedicated space where fathers of children with rare diseases can come together, share their experiences, and support one another.
This call is an opportunity to connect with other dads who understand the unique challenges and triumphs that come with caring for a child with a rare condition.
Whether you’re seeking advice, offering your own insights, or simply looking to connect with others who “get it,” this is a safe and supportive environment for you. Let’s come together to share strength, stories, and strategies for navigating this journey.
Virtual Event
Grandparent Alliance
We invite you to join our next Grandparent Alliance meeting on Thursday, April 24, 2025.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Virtual Event
Advocates Council
Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.
Virtual Event
Grandparent Alliance
We invite you to join our next Grandparent Alliance meeting on Thursday, May 22, 2025.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Virtual Event
Dad's Connect
Join us for an empowering Dads’ Connect call, a dedicated space where fathers of children with rare diseases can come together, share their experiences, and support one another.
This call is an opportunity to connect with other dads who understand the unique challenges and triumphs that come with caring for a child with a rare condition.
Whether you’re seeking advice, offering your own insights, or simply looking to connect with others who “get it,” this is a safe and supportive environment for you. Let’s come together to share strength, stories, and strategies for navigating this journey.
Virtual Event
Advocates Council
Join our Advocates Council Meeting where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.