Upcoming Events - Online & In-Person
We are excited to share upcoming regional and virtual community events that support our mission.
This page is your single stop for “being in the know” on upcoming regional events, online patient and family support meetings, and educational symposiums happening in person and online.
Join us in connecting with other families!
ONLINE Event
Grandparent Connect
We invite you to join our next Grandparent Connect meeting on Thursday, April 24, 2025.
We’ve begun alternating the times for our meetings to accommodate different schedules. This month, instead of 3:00 PM ET, we are meeting at 7:00 PM ET.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
ONLINE Town Hall
Cure JM 2025: Resilient Parenting
Join us for a powerful and practical Town Hall event with Ronda Thorington, MA, LPC, a Licensed Professional Counselor and Parent Coach specializing in supporting families facing medical uncertainty. The evening will include a guided Introduction to the Resilient Parent Toolkit with practical strategies to manage stress and foster deeper family connections, actionable tools for weekly resilience planning, medical appointment prep, and self-care. This Town Hall will be a supportive space to ask questions, share experiences, and find encouragement.
ONLINE Event
Young Adult Connect
Join our Young Adult Connect where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.
Online Event
Moms' Connect
We’d like to invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.
Our Moms’ Connect calls provide a safe and supportive environment where you can openly share your experiences, ask questions, offer advice, and connect with other incredible moms. Whether you’re looking for emotional support, practical tips for managing JM, or simply a group of women who “get it,” this is the place for you.
Online Town Hall
Tapering Medication
Join us to hear an informative Cure JM Town Hall with Dr. Kaveh Ardalan. He will provide insight into the art and science of tapering. Tapering or weaning off of medications is a critical part of managing Juvenile Myositis (JDM). This session will provide insights into the process of reducing or discontinuing treatments like steroids, methotrexate, IVIG, and other common medications used in JDM care. This session is designed to empower families with knowledge about tapering medications, fostering collaboration with their care team to make informed decisions tailored to each child’s unique needs.
Online Event
Grandparent Connect
We invite you to join our next Grandparent Connect meeting on Thursday, May 22, 2025.
Connect with other grandparents and learn how to provide support to families along their JM journeys.
Online Town Hall
JM 101
Join us for a special Cure JM Town Hall featuring Dr. Stacey Tarvin. This will serve as an essential introduction to juvenile dermatomyositis for families navigating a new diagnosis and will provide clear, compassionate guidance on managing treatments, and finding support. For families already on the JM journey, JM 101 will also cover the latest treatment protocols, best practices, and groundbreaking research shaping the future of care. Whether you’re newly diagnosed or looking for critical updates, this Town Hall is your chance to gain expert insights and connect with the Cure JM community.
Online Event
Dad's Connect
Join us for an empowering Dads’ Connect call, a dedicated space where fathers of children with rare diseases can come together, share their experiences, and support one another.
This call is an opportunity to connect with other dads who understand the unique challenges and triumphs that come with caring for a child with a rare condition.
Whether you’re seeking advice, offering your own insights, or simply looking to connect with others who “get it,” this is a safe and supportive environment for you. Let’s come together to share strength, stories, and strategies for navigating this journey.
Online Event
Young Adults Connect
Join our Young Adult Connect where we invite young adults to share their experiences and move forward ideas to support Cure JM’s mission to improve treatments and quality of life for all JM patients. Your voice matters! Please register and share your thoughts with us.
Online Event
Moms' Connect
We’d like to invite you to join Moms’ Connect, a dedicated space where you can find understanding, encouragement, and connection with other moms who truly understand what you’re going through.
Our Moms’ Connect calls provide a safe and supportive environment where you can openly share your experiences, ask questions, offer advice, and connect with other incredible moms. Whether you’re looking for emotional support, practical tips for managing JM, or simply a group of women who “get it,” this is the place for you.
In-Person Conference
Cure JM’s Midsouth Chapter is excited to invite you to a Cure JM Family Day in Nashville. Join other families navigating juvenile myositis for a fun and informative event with doctors from our Cure JM Clinical Care Network in the Family Resource Center at Vanderbilt Children’s Hospital. There will be separate fun and supervised activities for kids while parents, grandparents, and other adult family members are in educational sessions with the doctors. There will be time to connect with both the pediatric rheumatology team and other JM families. Lunch will be provided.
In-Person Conference
Cure JM’s Pittsburgh Chapter is excited to invite you to a Cure JM Family Day at UPMC Children’s Hospital. Join other families navigating juvenile myositis for a fun and informative event with doctors from our Cure JM Clinical Care Network in the Rangos Conference Center. There will be separate fun and supervised activities for kids while parents, grandparents, and other adult family members are in educational sessions with the doctors. There will be time to connect with both the pediatric rheumatology team and other JM families. Lunch will be provided.
In-Person Conference
Cure JM is excited to invite you to join us at Back Bay High School (Multipurpose Room) 390 Monte Vista Avenue Costa Mesa, CA 92627 from 10:00 am until 3:00 pm. The Cure JM Regional Conference is a fun and educational event where you will learn about current juvenile myositis research and best practices from the Cure JM Clinical Care Network doctors and other esteemed doctors. You will also have the opportunity to meet other families that are just like you.
