Rare Disease Month
February is Rare Disease Month. A month dedicated to raising our voices to the world through advocacy, awareness, and education. Since juvenile myositis is a rare disease, we would like to recognize the warriors and families who battle courageously every day.
During February, we will share different ways for you to help support our rare cause. Will you join us in making your voice heard for better treatments and care on our journey toward a cure?
Rare Disease Auction
At Cure JM, we are dedicated to helping children battling juvenile myositis. One way you can help is by registering to bid in our upcoming Rare Disease Auction. By doing so, you not only contribute to ongoing research, treatment, and education efforts but also play a role in helping children affected by JM rediscover the joy of being kids.
The Cure JM Rare Experiences Auction opens February 24th at 9:00 am Eastern! To view auction items and details, click the button below.
Rare Disease Proclamation
Join other JM families to help us deliver a proclamation of thanks to the National Institutes of Health (NIH) for their critical support of rare diseases, including juvenile myositis. Let the NIH know that the work they do for rare diseases matters to you and your family, and you want their continued support in discovering better treatments and a cure!
Rare Disease Warrior- Alex Hackney
Meet Alex Hackney, a rare disease warrior! Despite battling juvenile dermatomyositis (JDM) as a child, Alex Hackney never envisioned becoming a marathon runner, let alone completing prestigious races like the Chicago and New York Marathons. With over 15 years of grappling with JDM, Alex recently completing her third marathon and found closure and perspective in Chicago.
Make a Gift to Cure JM
Join us in supporting pivotal JM research, new clinical trials, and empowering educational programs, all with the goal of improving the lives of our JM kids and their families.
No gift is too small and in fact, could be game-changing for our rare disease families.
Thank you for joining our fight and making an impact that can change lives.
Meet Our Rare Disease Warriors
Since it is Rare Disease Month, we would like to take a moment and shine the spotlight on some of our amazing JM warriors.
Click the link below to read their stories and updates.
