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Cure JM Foundation Staff

James Minow

James Minow

James Minow

Executive Director

James Minow brings more than 30 years of nonprofit experience in executive management and fundraising to Cure JM Foundation. He served as the Chief Development Officer at the Foundation Fighting Blindness from 2005 to 2014, where he created and implemented programs that doubled annual revenues to $35 million. This funding has supported clinical trials that actually restored vision to the blind.

Before joining the Foundation Fighting Blindness, Jim held leadership roles at nonprofits across the country, working closely with patient, physician, and research communities to rapidly expand research programs, leading to better treatments and cures.

In all of Jim’s leadership roles, he has created and spearheaded many annual giving programs, events, major gifts, and planned giving programs that have led to each organization’s ongoing success.

He has worked closely with patient, physician, and research communities to rapidly expand research programs, leading to better treatments and cures.

Jim is a graduate of the University of California, Santa Barbara and now resides in Olney, MD. He has two grown children, Brandon and Carson.  Jim’s personal interests include historic preservation, including the restoration of his 1876 home.  An aviation enthusiast, Jim owns and flies a Beechcraft Bonanza whenever he can find the time.

Jim looks forward to strengthening the Juvenile Myositis research program, to find better treatment options and ultimately a cure.

Andrew Heaton

Dr. Heaton

Andrew Heaton, Ph.D.

Chief Scientific Officer

Dr. Heaton brings a 30-year career in pharmaceutical discovery, development, and translational studies to Cure JM, and most recently served as the CEO and President of Heaton-Brown Life Sciences and Novogen North America. Dr. Heaton, ushered several oncology compounds from the laboratory through Phase I, II and III clinical trials.

As CSO, Dr. Heaton serves as Cure JM’s science and research leader, proactively driving the growth and effectiveness of Cure JM’s grants and clinical research program. He serves as key staff to Cure JM’s Research Committee and Medical Advisory Board, providing strategic oversight, guidance, and leadership in executing Cure JM’s Research Priorities.

Dr. Heaton is the senior author on over 100, globally granted-patents, covering a wide range of molecular architectures and diseases and has published multiple papers in peer-reviewed scientific journals.

Dr. Heaton received his Bachelor of Science degree from the University of Tasmania, his doctorate from James Cook University of North Queensland, his MBA from Melbourne Business School, and completed a sabbatical at Imperial College, London.

He currently lives in Florida.

Shannon Malloy

Shannon Malloy

Shannon Malloy

Director of Development and Operations

Shannon Malloy has been with Cure JM since 2013 and manages Cure JM’s fundraising and internal operations programs, including the regional chapter and walk programs, volunteer engagement, annual Holiday Challenge, National Leadership Council, family fundraising events, and other events.

Shannon received her B.A. in Economics and International Studies from the University of Kansas.

She began her career in marketing at Intel where she managed operations, revenue, and demand forecasting for a complex and critical business segment. She then transitioned to Dell where she worked in procurement, managing operations for two strategic supplier relationships.

Shannon lives outside of Seattle with her husband Rich and two sons. In their spare time they enjoy reading, hiking, gardening, and traveling to the Oregon Coast.

Contact Shannon at .

Claire Johnston

Claire Johnston

Claire Johnston

Communications Manager

Claire is a content creator and communications strategist with a strong focus on data, testing and audience research.

She served as a writer and analyst at the U.S. Department of State’s Office of Innovative Engagement and launched the award-winning social media programs at the American Society of Clinical Oncology (ASCO). While at ASCO, she was a frequent, national presenter on social media topics in medicine, was a named author on five published research papers, a scientific abstract, and a research letter in JAMA Oncology.

After some time as a director at a digital agency, she is thrilled to return to healthcare-focused, cause-driven work.

A Kentucky native, Claire attended the University of Kentucky and George Washington University, with a focus on English and Strategic Public Relations.

Suzanne Edison

Suzanne Edison

Suzanne Edison, M.A., M.F.A.

Mental Health Coordinator

In 2007, after more than a year of searching for answers to her daughter Flora's declining health, Suzann'e life was altered forever when Flora was diagnosed with JDM. Since then, as part of Suzanne's own healing process, she has turned her journey as a parent dealing with JM into poetry, winning grants and publishing much of her work.

She also leads support groups for parents whose children have JM and other chronic illnesses. She has started a writing workshop for parents of kids with chronic illness at Seattle Children's Hospital (SCH), where her daughter is treated, and in 2010 was asked to join the Family Advisory Council at SCH.

Suzanne believes that bringing people together for education and support, raising awareness of JM and the effects of chronic illness on families, is now her life's mission. To that end, she continues to learn, write and teach about JM and other chronic illnesses. She lives with her husband, John, Flora a dog and cat, in Seattle.

Suzanne has been active in Cure JM for many years, participating in dozens of fundraisers and serving as Director of the Family Support Network, Family Support Representative for International Families, President of the Pacific Northwest Chapter, member of the Leadership Council, member of the Board of Directors, and member of Cure JM’s Research Committee.

Contact Suzanne at .

The Alvord Family

The Alvord Family

Lauren Griffiths Alvord

Development Manager

Lauren Griffiths Alvord came to Cure JM through the Intel Corporation Encore Fellows Program, a program where Intel retirees work for a nonprofit organization while receiving a stipend from Intel. Lauren chose to work at Cure JM because of her friendship with Mason Smedley and his family. For many years, Lauren had been a supporter of Cure JM through the Smedley family and had participated in many Cure JM fundraising events, including the Smedley Family’s annual Kids’ Fest in Hillsboro, OR.

Lauren is Cure JM’s Program Manager for the Walk Strong Across America to Cure JM® program. With annual walks being held in cities across the United States, the Walk Strong® program is Cure JM’s signature fundraising event, having raised over $500,000 in its first year.  Learn more at www.curejm.org/walkstrong.

Lauren brings over 30 years of Human Resources and project management experience from Intel Corporation to her work at Cure JM. She attended California State University, Chico where she studied Human Resources Management and Economics.

Lauren lives in California with her husband and two young sons. Contact Lauren at .

Simonetta D'Onofrio

Simonetta D’Onofrio

Simonetta D’Onofrio

Development Manager

Simonetta D'Onofrio joined the Cure JM Staff in 2018 as Development Manger. Among her many responsibilities, Simonetta manages Cure JM's Corporate Sponsorship Program, Grandparent Leadership Council, and Rare Experiences Auction.

Simonetta’s background is in social work, business, and volunteerism and joins Cure JM from the ALS Association. Her experience includes working in non-profits, hospitals, for-profit organizations, and government agencies. She graduated from The University of Maryland, College Park where she studied Psychology and then attended The University of Maryland, Baltimore for her graduate studies in Social Work. Simonetta has been involved in Cure JM since her son Marco was diagnosed with Juvenile Dermatomyositis (JDM) in 2013. Having participated in many Cure JM events and fundraisers, Simonetta stepped forward as the chair of Walk Strong to Cure JM D.C. in 2016. The Inaugural Walk Strong to Cure JM D.C. was held in June 2017 and was a great success.

Simonetta lives in the D.C. Metro area with her family. Contact Simonetta at .

Pam Aldred

Betsy León

Betsy León

Development Associate

Betsy León is a San Diego native and a University of California, San Diego alumna. She received her Bachelor’s of Science in Cognitive and Behavioral Neuroscience. 

Her interest in providing support, resources, and advocacy to disadvantaged communities comes from her passion of understanding cognitive and behavioral relationships. Since her recent college graduation in 2020, she worked as a paraprofessional with Autistic families. She obtained the skills to communicate and coordinate with families and supervisors to provide support and therapy to the best of her ability. The connections she made with each child challenged and motivated her to continuously learn, unlearn, and grow her understanding of neurodivergent and/or disabled communities.

Betsy joins the Cure JM Staff as a Development Associate providing leadership to the Walk Strong Across America and Giving Tuesday Holiday Challenge programs. Betsy aims to further Cure JM’s mission for improved treatment and a cure for Juvenile Myositis.

Outside of her professional endeavors, she loves to play piano and the alto saxophone. 

Pam Aldred

Pam Aldred

Pam Aldred

Data Program Manager

Pam brings 26 years of administrative and executive assistant experience in Marketing and Human Resources from Intel Corporation.

Post Intel, through the Encore Fellows Program, a program where retirees work for a nonprofit organization, Pam chose to work at New Mornings Children Shelter supporting the Executive Director. Once that ended, she signed up to finish another Program for a former co-worker, working as the Technical Coordinator at Lymelight Foundation.

For many years Pam has been a CASA (Court Appointed Special Advocate), advocating for children who have experienced abuse or neglect.

Pam lives in Folsom, California and in her spare time, she enjoys gardening, traveling, spending time with her son and daughter-in-law, family and friends.

Contact Pam at .