Nutrition and Exercise

This presentation addresses the important information about providing your JM Child with adequate nutrition and exercise. Two knowledgeable physicians focus on the best foods for a child with juvenile myositis, how to handle steroid cravings, and how to eat healthily with all the side effects of the medications.

The presenters discuss applying the nutrition and exercise recommendations sometimes provided by healthcare providers and making them work for your family in the “real world.”

Presented by:

  • Dr. Brian Feldman is Professor of Pediatrics, Medicine, Health Policy Management & Evaluation, and the Dalla Lana School of Public Health at the University of Toronto. He is Division Head of Rheumatology at The Hospital for Sick Children. Dr. Feldman is also a member of Cure JM’s Clinical Care Network.
  • Julie Shevlin, MS, RDN, is a pediatric nutrition registered dietitian, who has been in practice for more than fifteen years.

Sample Medication Chart

The number of medications used to manage juvenile myositis and its side effects can be overwhelming. Cure JM developed this sample medication chart to help you stay organized.

Ellen Stream’s Story: Walking and Quilting for JM Families

Ellen Stream’s love for her granddaughter, Brooklyn, fuels her commitment to the juvenile myositis community. When Brooklyn was diagnosed with juvenile dermatomyositis (JDM) at two and a half, Ellen faced a wave of fear. Would Brooklyn run and play like other kids? Could she enjoy school, sports, or friendships without the weight of infusions and flare-ups? Those early days brought uncertainty, but Ellen and Brooklyn’s other grandmother built a support system across miles, showing distance doesn’t dim love.

Anita and granddaughters at walk 2024

Grandparent Giving

Supporting Cure JM: A Grandparent’s Guide to Making a Difference As grandparents, your love and support are the bedrock of your family’s strength. You provide

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Cure JM supports families, patients, and the juvenile myositis research community.

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