Nutrition and Exercise

This presentation addresses the important information about providing your JM Child with adequate nutrition and exercise. Two knowledgeable physicians focus on the best foods for a child with juvenile myositis, how to handle steroid cravings, and how to eat healthily with all the side effects of the medications.

The presenters discuss applying the nutrition and exercise recommendations sometimes provided by healthcare providers and making them work for your family in the “real world.”

Presented by:

  • Dr. Brian Feldman is Professor of Pediatrics, Medicine, Health Policy Management & Evaluation, and the Dalla Lana School of Public Health at the University of Toronto. He is Division Head of Rheumatology at The Hospital for Sick Children. Dr. Feldman is also a member of Cure JM’s Clinical Care Network.
  • Julie Shevlin, MS, RDN, is a pediatric nutrition registered dietitian, who has been in practice for more than fifteen years.
Vamorolone FAQ

Vamorolone FAQs in JM

With the looming FDA approval of the drug vamorolone in Duchenne muscular dystrophy, there are questions surrounding the drug’s status for trials in juvenile myositis. We have consulted with JM experts on the potential implications of a pending approval for the drug in another disease and what this currently means for JM patients living in the U.S.

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Chapter Facebook Groups

Connecting with families can be a great source of knowledge and support. To connect with other families in your region, find your area below or contact Betsy Leon at info@curejm.org.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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