National Leadership Council

The Cure JM National Leadership Council is the organization that leads the charge to raise funds and advance Cure JM’s mission in communities across the country.

Watch this video on the National Leadership Council’s accomplishments over the past year and also across our 20-year history.
National Leadership Council at the 2023 Cure JM Conference

The National Leadership Council engaged in a meeting of the minds to plan for 2024

The council is made up of volunteers from around the world who are getting involved to make a future free from juvenile myositis.  Volunteers include families, friends, and members of the community.

The National Leadership Council is made up of committees, each with a different mission.  If you are interested in joining or starting a committee, please reach out to shannon.malloy@curejm.org.

The Officers and Steering Committee plans the work of the National Leadership Committee.

The full National Leadership Council meets quarterly, and committees may choose to meet more often. For more information, please contact Shannon Malloy at shannon.malloy@curejm.org.

 

 

 

 

 

 

 

 

 

National Leadership Council officers

Debbie DaumDebbie Daum
Officer, Co-Chair

John Caldwell
Officer, Co-Chair

Bobbie Bernhardt
Officer,  Vice Chair

Tiffany CaldwellTiffany Caldwell
Officer

Randy PuttRandy Putt
Officer, Grandparent Chair

Todd ScheidtTodd Scheidt
Officer

Anna RamseyAnna Ramsey
Officer, Chair, Advocates Council

Dave MaherDave Maher
Chair Emeritus

National Leadership Council Steering Committee

  • Matt Bernhardt
  • Trisha Buescher
  • Alyssa Carpenter
  • Jessica Doherty
  • Rebecca Gengler
  • Joanne Hall
  • Anh Hwang
  • Leah Kania
  • Lindsay Llauget
  • Veronica Montero
  • Lynn Neuenswander
  • Mark Nielson
  • Annie Nielson
  • Jason Phelps
  • Alyssa Quintero
  • Anna Ramsey
  • Ashley Renfrow
  • Luke Ryan
  • Liz Ryan
  • Mark Sangid
  • Norah Sangid
  • Damon Smedley
  • Shannon Taylor

Auction Committee

Committee Chair

        Denise Koch       

National Walk Committee

Committee Chair

        Zack Harrison       

Giving Tuesday Committee​

Committee Co-Chairs

Leah Kania
Becca Tighe

Family of Families Committee

Committee Chair

        Tiffany Caldwell      

DIY Fundraising Committee

Committee Chair

        Luke Ryan       

Dads connect

Committee Co-Chairs

Luke Ryan
John Caldwell

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.