Mental and Emotional Health FAQ for Caregivers

FAQ Graphic

Why is emotional/mental health important to our JM kids?

  • Listen to and watch Dr. Andrea Knight, Dr. Kaveh Ardalan, and Dr. Alison Manning discuss the impact of JM on JM kids. Quality of Life is crucial to our kids’ well-being. The mental and physical aspects are not separate. https://www.youtube.com/watch?v=p59cPxCB-P8&t=9s 

Where can I find out more about mental health issues for our JM kids?

  • Here is a link to many resources on our Cure JM website.
  • Here is the page for finding resources in your community and other coping skills issues on the Cure JM website.
  • Here is more information about how to get help and resources to consider, e.g., psychologists, psychiatrists, social workers, telemedicine, medications, support groups, etc.

Where can I learn more about how JM influences anxiety and depression?

Where can I learn more about the signs of anxiety and depression in kids and teens?

  • Here is information on signs of anxiety and depression 

Where can I get emotional support as a caregiver?

  • Cure JM provides quarterly parent/caregiver support groups online. Check with Suzanne Edison, Mental Health Coordinator, for dates and sign-ups. suzanne.edison@curejm.org 
The Carpenters Lemons to Lemonade- web

The Carpenters turn Lemons to Lemonade!

The Carpenter family hopes their efforts will raise awareness for Cure JM and bring hope to families like theirs.

The community went above and beyond in showing their support for the lemonade stand.

The 1000 cups with lids the Carpenters ordered quickly cleared out as more and more lemonade was sold!

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.