Meet the Kania Family: Giving Tuesday Co-Chairs

Leah and PJ are parents to four-year-old daughter Olivia, who has been bravely fighting JM for almost two years. Together, they lead Cure JM’s annual Giving Tuesday Fundraiser. At the beginning of treatment, Leah and PJ felt helpless in easing Olivia’s pain—so they channeled their efforts into Cure JM.

“Raising money for Cure JM helped us focus our energy towards something that would support her health, her doctors, and the JM community,” says Leah. 

Since then, the entire family has come aboard to support Olivia. Along with her parents, both sets of grandparents are committed to furthering research. Their support and love from day one have been crucial for Olivia, Leah, and her husband. 

Not only have they given back to Cure JM, but Cure JM has supported their family, too. Leah and PJ have been connected to families who understand precisely what they are going through. Even with the trials of flares and treatments, they have a steady support system to remind them they are not alone. 

The Cure JM community is itself a family, and this family has found a greater home within it. Remission is their shared goal, and fundraising is their strategy to help Olivia get there. All four grandparents—Joe, Lori, Michael, and Celene—have directly participated. Even further, they’ve turned to their social circles for support. They raised awareness with their friends, family, and workplaces. In just one year, Olivia’s family raised over $22,000 for Cure JM’s research. 

To Olivia’s grandparents, supporting their granddaughter’s health is an honor. They admire not just her sense of positivity but also her courage and resiliency. She has maintained her sense of humor and ability to see the good even in the struggle. There was a time when Olivia could not stand. But now, she can run, skip, and ride her bike. The hopeful family surrounding her will continue to watch her improve and grow. Olivia is not alone. There are so many people committed to giving her the best life possible. The Kania’s are just the beginning.

“We hope every family will join us this Giving Tuesday,”  says Leah.  “Every family’s participation is so Important to our success.”

Join the team today and be part of Giving Tuesday—the biggest day of the year at Cure JM! 

Emma's Story of Hope, Giving Tuesday 2024

Emma’s Story of Hope – A Tale of Life-Changing Care

At 12 years old, Emma’s world was turned upside down. An energetic cheerleader who loved spending time with her friends, she suddenly found herself constantly fatigued, her muscles weak and aching. What began as mild discomfort quickly escalated into something far more serious.

Jim’s 2024 Resolutions

Each January, I share with our community a few personal New Year’s resolutions for the year ahead. I believe these resolutions help us keep a keen focus on the priorities that matter most—better treatments, better care, and a cure for JM.

What is IVIG?

What Parents Should Know About IVIg (Intra-Venous ImmunoGlobulin)

The questions about what to do before and post-IVIg to prevent side effects come up often. We know that IVIg can be a very beneficial treatment for JDM, yet it is not without potential side effects. Please read further to minimize the event’s trauma and prevent side effects, e.g., nausea, severe headaches, etc.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.