Volunteer Spotlight- Kristine Alderfer

As a member of the Cure JM community, you have likely heard the name Kristine Alderfer, a devoted parent of a teen with JM who has become a leader, serving as the President of our Board of Directors.

Kristine has been involved in Cure JM through volunteer roles for many years, and her involvement has become a family affair, as her daughter Katherine is a patient advocate for others with the disease. For over a decade, the Alderfer family has volunteered their time and talents to deliver a lasting impact on our mission. The family has hosted countless JM research fundraisers, including Christmas Shop for a Cure, Evening Under The Stars, and Cure JM marathons.

Most recently, Kristine has taken her leadership to new heights, serving as the Volunteer Chair of Cure JM’s National Family Conference.

We would like to thank the Alderfer family for carrying out the work that supports our community. Click below to hear about Kristine and Katherine’s rare disease journey.

Read Kristine’s Story

Unveiling the Future of Hope, Malloy and Heaton, September Town Hall 2024

Unveiling the Future of Hope

This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.

Affordable and Accessible Treatments for JM

Affordable and Accessible Treatments for JM

Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care for JM patients.

Join Cure JM

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Cure JM supports families, patients, and the juvenile myositis research community.

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