Volunteer Spotlight- Kristine Alderfer

As a member of the Cure JM community, you have likely heard the name Kristine Alderfer, a devoted parent of a teen with JM who has become a leader, serving as the President of our Board of Directors.

Kristine has been involved in Cure JM through volunteer roles for many years, and her involvement has become a family affair, as her daughter Katherine is a patient advocate for others with the disease. For over a decade, the Alderfer family has volunteered their time and talents to deliver a lasting impact on our mission. The family has hosted countless JM research fundraisers, including Christmas Shop for a Cure, Evening Under The Stars, and Cure JM marathons.

Most recently, Kristine has taken her leadership to new heights, serving as the Volunteer Chair of Cure JM’s National Family Conference.

We would like to thank the Alderfer family for carrying out the work that supports our community. Click below to hear about Kristine and Katherine’s rare disease journey.

Read Kristine’s Story

Vamorolone FAQ

Vamorolone FAQs in JM

With the looming FDA approval of the drug vamorolone in Duchenne muscular dystrophy, there are questions surrounding the drug’s status for trials in juvenile myositis. We have consulted with JM experts on the potential implications of a pending approval for the drug in another disease and what this currently means for JM patients living in the U.S.

Rebecca Karsten, Why I Fundraise, Ellory, Giving Tuesday 2024

Why I Fundraise

Rebecca Karsten– “Hello! Welcome to a wonderful community that even though we never wanted to join; we are now so happy to be part of.

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Cure JM supports families, patients, and the juvenile myositis research community.

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