Mental Health Coordinator

Part-time contract consultant (20 hours per week average)

Cure JM is a nonprofit organization whose mission is to find a cure and better treatments for juvenile myositis and better the quality of life for children and families impacted by the disease. Juvenile myositis is a rare and life-threatening autoimmune disease in which the body’s immune system attacks its own cells and tissues, predominantly resulting in skin rashes and muscle weakness.

We are excited to offer this consultant position of Mental Health Coordinator to facilitate communication between mental health providers and clinical providers. Specifically, we are seeking an energetic and motivated person with experience in the mental health field to develop and effectively disseminate mental health resources to assist families in addressing mental health challenges caused by JM and to increase access to those resources in, or through, pediatric rheumatologists’ offices.

The Need for a Mental Health Program:

Over the past 5 years, it has become clear to the Cure JM leadership, through surveys and facilitated focus groups conducted with parents and children, that children with JM are suffering from depression and anxiety at 2-3 times a higher rate than those without JM. Yet, through extensive conversations and research done by the Mental Health working group within the Childhood Arthritis Rheumatology and Research Alliance (CARRA), pediatric rheumatologists throughout the U.S. often lack the familiarity, training, and resources to effectively help our parents and children with mental health issues. CARRA is a professional organization of pediatric rheumatologists.

Goals of the Mental Health Program:

Due to the lack of training and resources for medical personnel and the lack of access to assessment and treatment pathways for our JM kids, we intend to enhance, develop and disseminate written and digital materials about mental health resources across the U.S. to our clinicians and families. We also intend to develop support structures (webinars and possible peer support groups) for our families. We will work with CARRA and our JM clinicians to help facilitate access to mental health assessments and treatment pathways in their practices. In collaboration with pediatric rheumatologists, CARRA, and psychologists, we will help develop training materials for future pediatric rheumatology fellows and current clinicians.

Position Responsibilities:

  • Enhance existing and develop additional materials for family education. Create and implement a distribution plan to clinics. Create and manage webinars, website information, and other written materials. Collaborate with state and national mental health service providers as resources.
  • Develop survey for parents, teens and young adults about support group possibilities for children with JM. Recommend support group structure based on survey data.
  • Partner with pediatric rheumatologists (PedRheums) through CARRA to advocate and navigate local needs to implement, coordinate and increase access to mental health resources—e.g. Use template from Seattle Children’s Hospital to help other Ped/Rheums incorporate assessment and treatment pathways in their practices. Identify and create strategies to address barriers, challenges, and access options.
  • Develop clinician education in the form of a video on the importance of, and data to support, the need for mental health conversations and resources for kids living with chronic illness.
  • Develop a framework in communication with Ped/Rheums and psychologists for training modules for PedRheums and fellows (partnering with CARRA) to build comfort and skills with talking to families and patients about mental health to include:
    • Videos for PedRheums demonstrating how to talk about the importance of emotional and physical health for newly diagnosed families
    • Videos for PedRheums to talk to children & separately, teens about the ongoing importance of emotional and physical health with chronic illnesses
    • Collaborate with CARRA and related pediatric rheumatic disease organizations to advocate for/implement MH assessment/treatment pathways in pediatric rheumatology settings to increase access to mental health resources

Preferred Qualifications:

  • Familiarity with rare and chronic pediatric illnesses
  • Experience working in the field of mental health (social worker, psychologist, psychiatric nurse, psychiatric NP, or psychiatric PA)
  • Fellows and graduate students with supervisors in the above fields are also welcome to apply
  • Excellent organizational, interpersonal, and communication skills
  • Ability to work collaboratively
  • Comfortable with medical providers and families

Compensation and Location:

The Mental Health Coordinator is a telecommuting position. The successful candidate can be located anywhere within the Continental U.S. The Coordinator is responsible to the Cure 2JM Mental Health Subcommittee of the Board of Directors and reports through the Executive Director.

This is a contract consultant position, and it is anticipated that the successful candidate will work on an independent schedule that averages 20 hours per week. The successful candidate will provide his or her own workspace as an independent contractor. Candidates must be United States citizens or be authorized to work in the U.S.

Compensation is negotiable, and is anticipated to be $25,000 - $35,000 a year.

Candidates may submit a cover letter and resume or curriculum vitae to:

Dr. Allison Taylor
Chair, Mental Health Search Committee

Cure JM is an Equal Opportunity Employer