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IVIG: What Families Need to Know

In this session, learn about IVIG (immunoglobulin therapy administered by vein):

  • What is IVIG?
  • When do doctors consider IVIG as a treatment?
  • What can you and your child expect during an infusion?
  • What are the tips for the day of the IVIG treatment?
  • What do you need to know about insurance?

This session features:

  • Dr. Fatma Dedeoglu of Boston Children’s Hospital
  • Huub Kreuwel Ph.D., of Octapharma Plasma
  • Patient advocate Michelle Vogel, of CSI Pharmacy
Sari's Story of Hope

Sari’s Story

Sari’s pain began in September of 2018, during gymnastics practice. It started in her shoulder. She didn’t give it much thought. But then it worsened,

Emma's Story of Hope, Giving Tuesday 2024

Emma’s Story of Hope – A Tale of Life-Changing Care

At 12 years old, Emma’s world was turned upside down. An energetic cheerleader who loved spending time with her friends, she suddenly found herself constantly fatigued, her muscles weak and aching. What began as mild discomfort quickly escalated into something far more serious.

Natalia in her Team Natalia Shirt

Natalia’s Story

Natalia is seven years old, and in January 2021, she began experiencing pain. Everyday tasks were difficult. Natalia’s parents, Lindsay and Matt, reached out to

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