All Family Resources
All Clinician Resources

IVIG: What Families Need to Know

In this session, learn about IVIG (immunoglobulin therapy administered by vein):

  • What is IVIG?
  • When do doctors consider IVIG as a treatment?
  • What can you and your child expect during an infusion?
  • What are the tips for the day of the IVIG treatment?
  • What do you need to know about insurance?

This session features:

  • Dr. Fatma Dedeoglu of Boston Children’s Hospital
  • Huub Kreuwel Ph.D., of Octapharma Plasma
  • Patient advocate Michelle Vogel, of CSI Pharmacy
Town Hall April 2024, IVIG, Tory, Cherwin, Vogel, Alderfer

IVIG – What Parents and Caregivers Need to Know

Hear from a panel of four experts about IVIG, including important tips for a successful IVIG journey.

The panel will discuss a variety of must-know information on successful IVIG treatment days, navigating the system, at-home vs. outpatient options, pre & post-treatment checklists, and more.

Exercise and Juvenile Myositis

In this presentation, Dr. Laura Tasan explains the importance of exercise for JM patients. Since JM children suffer from endurance and fatigue issues, exercise for

Research Achievements

A task that seemed daunting 20 years ago, to change the world for patients diagnosed with juvenile myositis, is now within our reach.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Join Now
Cure JM supports families, patients, and the juvenile myositis research community.

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.