Why Should I Consider Getting a Second Opinion for My JM Child

Town Hall Meeting Sunday September 11, Why I should consider getting a second opinion for my JM Child with Lisa G. Rider and Jeffrey Dvergsten

Learning that your child has Juvenile Myositis may feel overwhelming. Second opinions can confirm a diagnosis, help you understand different treatment options, and review your child’s current treatment plan to ensure it’s the right one for your family.

Featuring:

Dr. Rider is a Pediatric Rheumatologist and Head of the Environmental Autoimmunity Group, National Institute of Environmental Health Science, National Institutes of Health, in Bethesda, Maryland. Dr. Rider is also an esteemed Cure JM Medical Advisory Board member. Since 2008, Dr. Rider has also been a Clinical Professor of Medicine at George Washington University. She sees patients and leads research on juvenile myositis in the Cure JM Center for Excellence and at the National Institute of Health as part of her research studies.

Dr. Dvergsten is a pediatric rheumatologist and physician-scientist who has built his clinical and research career around juvenile myositis. He co-founded Duke’s Myositis Clinic, a designated Cure JM Center of Excellence. He also created and manages a repository for research biospecimens from children with inflammatory myopathies.

Research Update: misbehaving Mitochondria Linked to Juvenile Dermatomyositis. Dr. Christian Lood

Breakthrough Discovery: Misbehaving Mitochondria Linked to Juvenile Dermatomyositis

The generous support of our community has been instrumental in funding groundbreaking research this year, led by Dr. Christian Lood at the University of Washington and Cure JM’s Center of Excellence at Seattle Children’s Hospital. Dr. Lood’s team has identified calcified mitochondria in the muscle tissue of JDM patients with calcinosis – a finding that sheds new light on understanding JDM

Ways to help your kids and yourself cope living with JM

Cure JM Mental Health Coordinator, Suzanne Edison discusses ways to help your kids and yourself cope living with JM. Learn about emotional and behavioral challenges that often come with chronic diseases like juvenile myositis and ways to help patients and caregivers cope.

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