Grandparent Council

What is the Grandparent Council? 

We are grandparents of a grandchild living with juvenile myositis. 

Our mission as grandparents is to learn about juvenile myositis and support each other so we can support our grandchildren and their families.  We also help advance Cure JM’s mission to give our grandchildren the best shot at a bright future ahead.

Our Goals Are: 

To connect with other grandparents.  We’re stronger together. By connecting with other grandparents and learning their stories, we can better understand juvenile myositis and how we can support our grandchildren and their siblings and families.  

To support our grandchildren and their families.  Through the Grandparent Council, grandparents will be introduced to other grandparents and can connect with other grandparents to learn how they support their grandchildren.

To learn about Juvenile Myositis.  Juvenile Myositis care and research is an emerging field.  By learning about this disease, we can best support our families. 

To make a difference for our grandchildren.  Grandparents have expressed interest in getting involved.  By getting involved, we can move Cure JM’s mission forward for our grandchildren.  This will help give our grandchildren the best shot possible at a full life ahead. Many hands make light work. 

When does the Grandparent Council meet? 

The Grandparent Council meets monthly by phone.  The monthly phone meetings are a chance for Grandparents to connect with each other and plan the work of the Grandparent Council.  

The Grandparent Council meeting will also have occasional guest speakers, such as researchers and physicians, who will give updates on the latest in juvenile myositis research and care.  These sessions give Grandparents a chance to learn and ask questions of the researchers and physicians. 

We also meet in person every other year at the Cure JM Family Conference.

All grandparents are invited to participate. To be added to the invitation list, please contact Betsy Leon at Betsy.Leon@curejm.org

Grandparent Council Leadership– Randy Putt

2025 Cure JM Family Conference

We are excited to announce that the Cure JM National Family Conference will be back in 2025! Join us for three days with world-class JM researchers, engaging sessions for all, and social time to connect with new friends. The 15th Annual Cure JM National Family Conference is taking place June 27th -June 29th, 2023, in Chicago, Illinois.

Parrish Story of Hope

Parrish’s Story

We would like to introduce a one-of-a-kind, competitive, and determined young man, named Parrish. His story of resiliency and hope is one that will resonate with many of us in the Cure JM family. Parrish faced many challenges in his journey with JM, but found hope and support in his family and the Cure JM community. We are pleased to now share his experience to help others facing the same struggles during Myositis Awareness Month.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

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