One of the ways you can help your children cope with juvenile myositis is by giving them a sense of control over their doctor visits and treatments.
Giving children a checklist makes them a part of the process and helps them to remember to address any concerns they might have.
You can use these checklists “as is” or customize them for your child and medical situation.
Download checklists in a customizable format for your child!
Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.
A task that seemed daunting 20 years ago, to change the world for patients diagnosed with juvenile myositis, is now within our reach.
Feeling Lost After a Myositis Diagnosis? Find Support with Cure JM Mentors! Cure JM is a strong community – a “Family of Families” – and
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.
