Cure JM Foundation 2016 Annual Conference Recap

Special workshop session just for Dads, facilitated by Rob Ramsey, member of the Cure JM Leadership Council

About two dozen fathers of children with Juvenile Myositis (JM) came together for a special breakout session just for dads. The dads all shared their experiences and emotions about parenting a child with JM.

JM Dad at Workshop

Hearing directly from the other dads was really positive...”

“Hearing directly from the other dads was really positive,” says Luke Prescott, father of a child with JM. “Many of our experiences were similar and the other dads had good ideas on how to balance everything associated with JM.”

In this session the dads also shared some tips and tricks for dealing with common issues such as:

  • Staying involved with their child’s medical needs, even if not serving as the family’s primary caregiver
  • Finding out and utilizing your employer’s policies on family leave
  • Maintaining good communication with doctors, your partner and other JM caregivers and parents
  • Always knowing your child’s current medications and dosages for emergencies
  • Caring for siblings and siblings’ needs
  • Finding time for fun as a family

The key, the dads agreed, is always being able and ready to contribute to an informed discussion on your child’s health and treatment with your family and medical professionals whenever the occasion arises.