Cure JM Foundation 2016 Mason’s Miracle Award

Presented to the Alderfer Family by Shari Hume, Cure JM Co-Founder and Vice President

Kim, Sue and and Kristen Carpenter

Mason Smedley

In 2012, Cure JM established a special award in memory of Mason, called The Mason’s Miracle Award. Mason was, and continues to be, an inspiration to everyone.

He showed great courage and strength in his battle with JM. Despite his challenges, he had an amazing sense of humor, and his charm instantly won over everyone he met.

He was, and will always be, a true hero and has made a difference in countless lives. This award is now given annually to someone who carries on the spirit of Mason, and demonstrates the unfaltering courage, optimism and perseverance that Mason showed us all.

I am honored tonight to present this award to a family who possess all of these qualities. In the midst of their trials with JM, from braving numerous hospital admissions to painful complications, they continually inspire those around them that a Cure for JM is possible. Through multiple creative fundraising events over the years, they motivate others in their town of Warsaw, Indiana and throughout the broader Cure JM community. The Alderfer family rallied their community in HOPE for a Cure for events such as bakery sales of Easter pastries, Cookies for Katherine, Photos with Santa to Cure JM, and on to an annual ever-growing Christmas Shop to Cure JM that this year celebrated it’s 4th year with more than 50 vendors. Their incredible volunteer efforts have raised tens of thousands of dollars providing hope to so many and also more importantly remind us of the courageous difference that one family can make in the fight against Juvenile Myositis.

This year’s Mason’s Miracle Award goes to The Alderfer Family: Kristine, Alan, Katherine & Caroline

Cure JM Co-Founder Shari Hume with 2014 Mason Miracle Award Winner Sue Carpenter and Cure JM Foundation Chairman Rhonda McKeever

Shari Hume (right) with the Alderfer family

I wanted to share some words that Mason’s parents wanted to share about Mason’s award and the Alderfer family.

“Watching from afar through [social media], I have seen the never ending commitment this family has put into raising awareness and funding to find a cure. Beyond the money and awareness, seeing Katherine and her sister constantly involved and advocating for Cure JM with a great big smile is simply priceless. Mason amazed me every day regardless of what he was up against, he always seemed to find a way to smile. The involvement of families such as the Alderfers is and always will be, a key component to the success of Cure JM.

SO from our family to theirs - Thank you for your continued commitment and passion to help not only your child but every child that will enter this earth with the unfortunate fate of battling JM.  You and your family have given them hope that they will find remission and someday a Cure!

Thank you again for keeping Mason's spirit alive through this award.  It means a lot to us!”