In this presentation, Dr. Laura Tasan explains the importance of exercise for JM patients. Since JM children suffer from endurance and fatigue issues, exercise for JM kids is a safe form of “medicine” to counter the effects of the disease on a JM patient’s muscles.
Tips and links for dealing with insurance claims, denials and appeals, making phone calls, changes in health care law, help with medical bills, and more.
Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.
We have compiled a list of Cure JM items you can purchase, as well as other products, that might help you and your child in their JM journey.
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
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