
Child’s Checklist for Doctor Visits
One of the ways you can help your children cope with juvenile myositis is by giving them a sense of control over their doctor visits and treatments.

One of the ways you can help your children cope with juvenile myositis is by giving them a sense of control over their doctor visits and treatments.

With the looming FDA approval of the drug vamorolone in Duchenne muscular dystrophy, there are questions surrounding the drug’s status for trials in juvenile myositis. We have consulted with JM experts on the potential implications of a pending approval for the drug in another disease and what this currently means for JM patients living in the U.S.

Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.
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