One of the ways you can help your children cope with juvenile myositis is by giving them a sense of control over their doctor visits and treatments.
Giving children a checklist makes them a part of the process and helps them to remember to address any concerns they might have.
You can use these checklists “as is” or customize them for your child and medical situation.
Download checklists in a customizable format for your child!
Kristine has been involved in Cure JM through volunteer roles for many years, and her involvement has become a family affair, as her daughter Katherine is a patient advocate for others with the disease.
Balancing the demands of a career with the responsibilities of caregiving is a challenging task for any parent. For those with a child diagnosed with juvenile myositis (JM), a rare autoimmune disease affecting children, the challenge is heightened. Juggling work commitments while providing the necessary care and support for a child with JM can be taxing. In this article, we hope to provide you with a few effective strategies and insights to help working parents navigate this delicate balance.
The Spring Cure JM Medical Symposium in partnership with Duke University happened May 23rd, 2024, virtually, with presentations from world-leading researchers and clinicians on advancements in basic research, translational studies, and best practice clinical care in juvenile dermatomyositis.
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
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