Helpful Information for the Newly Diagnosed
You or a family member has just been diagnosed with juvenile dermatomyositis or juvenile polymyositis, and you feel as if the world has shifted under your feet.
You’re not alone.
Families here at Cure JM have gone through the same emotions you are experiencing now. We are here to help.
Information for Newly Diagnosed Families
Two physicians that take care of JM patients cover the following topics:
- JM basics
- Common treatments
- Sun protection
- Partnering with your medical team
- Keeping track of medical records
- Preparing for doctors’ visits
- Seeking support
Our “Stories of Hope” series sheds light on the inspiring journeys of JM patients and families as they conquer the challenges that come with juvenile myositis.
These tales of hope remind us that anything is possible and hope for a brighter future is ahead.
Juvenile Myositis Overview
This video provides an overview of juvenile myositis and what to expect through doctor, patient and family interviews.
Cure JM is a strong community – a “Family of Families” – and we know how overwhelming a new myositis diagnosis can be. That’s why we offer our Cure JM Mentor Program, connecting you with experienced individuals who have walked a similar path and come through healthy and thriving!
Six Best Practices for the Newly Diagnosed
In speaking with JM families, we have identified six, “best practices,” that are absolutely crucial when you, your child, and family are battling juvenile myositis.
Join Cure JM
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
