All Family Resources
All Clinician Resources

JDM 101: Lo Que Los Padres Necesitan Saber

Únase a nosotros para escuchar al Dr. Torres. JDM 101: Lo Que Los Padres Necesitan Saber – Prepárate con el conocimiento esencial para enfrentar la dermatomiositis juvenil (JDM). Esta guía ofrece a los padres la información clave necesaria para comprender, manejar y abogar por la salud de su hijo.

In English: Join us in hearing from Dr. Torres. JDM 101: What Parents Need to Know – Equip yourself with the essential knowledge to navigate juvenile dermatomyositis (JDM). This guide offers parents the crucial information needed to understand, manage, and advocate for their child’s health.

IVIG: What Families Need to Know

Learn about IVIG (immunoglobulin therapy administered by vein). This session features Dr. Fatma Dedeoglu of Boston Children’s Hospital, Huub Kreuwel PhD, of Octapharma Plasma, and patient advocate, Michelle Vogel, of CSI Pharmacy.

Alex Hackney’s Story

Despite battling juvenile dermatomyositis (JDM) as a child, Alex Hackney never envisioned becoming a marathon runner, let alone completing prestigious races like the Chicago and New York Marathons. With over 15 years of grappling with JDM, Alex recently completing her third marathon and found closure and perspective in Chicago.

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