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Helping Parents & Kids When They Express High Emotional Distress

Town Hall June 2024, Thorington, Turnier, Emotional Distress

This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.

Town Hall April 2024, IVIG, Tory, Cherwin, Vogel, Alderfer

IVIG – What Parents and Caregivers Need to Know

Hear from a panel of four experts about IVIG, including important tips for a successful IVIG journey.

The panel will discuss a variety of must-know information on successful IVIG treatment days, navigating the system, at-home vs. outpatient options, pre & post-treatment checklists, and more.

Exercise and Juvenile Myositis

In this presentation, Dr. Laura Tasan explains the importance of exercise for JM patients. Since JM children suffer from endurance and fatigue issues, exercise for

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