Cure JM Foundation Videos

Information About Cure JM Foundation
Information for the Newly Diagnosed
COVID-19 Information
Cure JM Sponsored Webinars with Healthcare Professionals
Cure JM Annual Conference Videos

Information about Cure JM Foundation

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Fundraising/Overview Video

Cure JM 2019: Towards Better Treatments

Presented by Cure JM Foundation CSO Dr. Andrew Heaton

Parker’s Journey and the Start of Cure JM

Information For the Newly Diagnosed

Cure JM Educational Video

Video for the Newly Diagnosed

JDM 101 with Dr. Ann Reed

Dr. Ann Reed is Chair of the Department of Pediatrics at Duke University and a Professor of Pediatrics at Duke. She’s a world-renowned pediatric rheumatologist and immunologist, who has spent decades caring for children with Juvenile Dermatomyositis (JDM). In this video, Dr. Reed tells us what JDM is, how it is diagnosed, and how it is treated.

COVID-19 Information

Recording of Cure JM Town Hall: Returning to School in the COVID-19 Pandemic

This Town Hall addresses the issue of returning to school during the COVID-19 pandemic and aims to provide a range of tools, links and resources to assist families in making individual decisions in considering whether their child should return to school this fall. The tools and information will provide valuable resources for families to discuss their individual circumstances with their attending physician. The Town Hall was led by Rear Admiral Charles Vitek, MD, MPH, Colleen Correll, MD, MPH, and Dawn Wahezi, MD.

Presentation: Returning to School in the COVID-19 Pandemic

Cure JM Sponsored Webinars with Healthcare Professionals

Flare Predication and Risk Profiling in JDM

Dr. Annet van Royen-Kerkhof’s presentation based on her research paper, “Endothelial and Inflammation Biomarker Profiles at Diagnosis Reflecting Clinical Heterogeneity and Serving as a Prognostic Tool for Treatment Response in Two Independent Cohorts of Patients With Juvenile Dermatomyositis”. The paper details a Cure JM-funded study that aimed to define “immune-fingerprints” that can predict clinical outcomes and responses to therapy in chronic inflammatory diseases, such as juvenile dermatomyositis (JDM).

Transitioning from Pediatric to Adult Care with Rodolfo Curiel, MD, FACP, FACR, and Rebecca Sadun, MD, PhD

Join doctors Curiel and Sadun to learn strategies to aid in the transition from pediatric to adult care.

Auto-Antibodies in Juvenile Myositis with Sara Sabbagh, D.O.

This webinar will introduce you to the concept of Myositis Specific Antibodies, or MSAs. The webinar is presented by Sara Sabbagh, D.O., Clinical Fellow, Muscle Disease Unit at the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the National Institutes of Health (NIH).

Understanding Labs and Investigations with Dr. Adam Huber

Labs and investigation results are an essential tool in managing a patient’s treatment for JM. To the non-medically trained, labs and investigations can also be a great source of confusion. In this webinar, Dr. Adam Huber, a pediatric rheumatologist at the IWK Health Centre and Dalhousie University in Halifax Nova Scotia, Canada, helps patients and family members better understand lab and investigation results and what they may indicate. Due to technical difficulties, there is no recording of this webinar, but you may review Dr. Huber's slide presentation below.

Advocating for Your Child: Navigating School and Community

Presented by Cure JM Moms Michelle Best (special education and mental health advocate) and Sue Carpenter (special education resource specialist/teacher)