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Cure JM Foundation Press Releases

FOR IMMEDIATE RELEASE

12-YEAR-OLD AUTOIMMUNE DISEASE SURVIVOR SINGS TO FIND CURE

LAFAYETTE, CA  (August 10, 2013)  –  A survivor of a rare children’s autoimmune disease hopes to bring attention to the need for a cure for others through her song.  Samantha Martin, who performs under the name Penny Lane, collaborated with her father to write the song “Soldier On” in honor of all the children and families who struggle with the pain and heartbreak that Juvenile Myositis can bring.

Doctors diagnosed Samantha Anne Martin of Lafayette, Calif., at age 3½ with Juvenile Myositis, a rare and incurable autoimmune disease that can cause severe muscles weakness, fatigue and rashes and even lead to death.  Now 12, Martin is in her second remission of the disease and determined to make a difference.

“I want the world to know Juvenile Myositis can be a devastating disease that medical science has yet to find a way to definitively cure or prevent,” Martin said. “I also wanted those kids who have Juvenile Myositis and their families to know that there is hope despite the seemingly endless treatments and difficulties. I’m an example of that. I hope to stay one for a long time.”

Juvenile Myositis affects 17,000 children in the U.S. alone.  Juvenile Myositis is often treated with potent corticosteroids, IV treatments, immunosuppressants and chemotherapy that can cause severe medical complications. While some patients enter into remission, many must remain on these medications permanently.

Martin’s song “Soldier On” is available on iTunes at http://tinyurl.com/BuySoldierOn.  All proceeds go to Cure JM Foundation (http://curejm.org), a volunteer-managed nonprofit organization dedicated to funding research to find a cure for Juvenile Myositis.

“My video for the song ends with still photos of dozens of children who have Juvenile Myositis – some of whom have died from the disease or its complications, many others of whom are still battling it, most holding signs that read ‘I need a cure,’” said Martin. “We need to find a cure so no other child has to suffer from it again.”

 

Click the photo to watch the “Soldier On” video at http://tinyurl.com/WatchSoldierOn:

Soldier On

About Cure JM

Cure JM Foundation is a volunteer-managed 501(c)(3) nonprofit organization dedicated to finding a cure for Juvenile Myositis (JM).  The Cure JM mission is to provide support for families coping with JM, raise awareness of JM, and fund research that will ultimately lead to a cure.  Cure JM is the only organization that solely supports JM research and JM families.  Through nationwide grassroots fundraising efforts, Cure JM Foundation has raised over $5 million for JM research. These funds have been used to help establish JM research centers at both Ann & Robert H. Lurie Children’s Hospital of Chicago and George Washington University in Washington, D.C. In addition, Cure JM Foundation has funded a wide range of genetic and JM treatment studies, as well as fellowships.  Our goal is to never, ever let another child suffer with Juvenile Myositis. With your help, we believe it’s a goal that’s well within our reach.  For more information on Cure JM go to www.curejm.org.

For More Information

About Samantha Anne Martin:

  • Contact Dan Martin at 925-999-0745 or .

About Juvenile Myositis:

  • Contact Rhonda McKeever, chairman of Cure JM Foundation, at 203-832-5001 or .

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