Myositis Specific Autoantibodies or MSA’s for Short – What You Need to Know
First, a few terms to know when talking about Myositis Specific AutoAntibodies. So why do we talk about Myositis Specific Autoantibodies? We know that JDM
First, a few terms to know when talking about Myositis Specific AutoAntibodies. So why do we talk about Myositis Specific Autoantibodies? We know that JDM
Here are some ideas shared with us by JM grandparents on how how to best support their grandchild, siblings, and family.
One common issue that we hear about from our families is that after diagnosis their child has trouble falling asleep or staying asleep. This can
Juvenile myositis, including juvenile dermatomyositis and juvenile polymyositis, is a group of rare and life-threatening autoimmune diseases, in which the body’s immune system attacks its
Two special guest speakers, Michelle Vogel, MPA, IV Solutions RX, and Laurel Cherwin, BSN, RN, IgCN, Octapharma, shared information on navigating affordable treatments and care
You may have heard about yesterday’s FDA ruling, which approved vamorolone as an alternative steroid for use in Duchenne muscular dystrophy.
Vamorolone is a
In January, Cure JM presented a town hall on the achievements of 2023 and goals for 2024.
In October, Cure JM had two speakers give an update about drug discovery in juvenile myositis.
Cure JM Mental Health Coordinator, Suzanne Edison discusses ways to help your kids and yourself cope living with JM. Learn about emotional and behavioral challenges
Building friendships with others in the JM community can be difficult. Since JM is a rare disease, medical common ground might be a state away.
It often takes a bit of time for children with juvenile myositis (JM) to get a proper diagnosis. This is due to the fact that
Practical tips on how to navigate your child’s school system. Presented by Michelle Best (special education and mental health advocate) and Sue Carpenter (special education
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