Our Leadership

Cure JM is led by a passionate team of volunteers, staff, and medical experts in juvenile myositis research and care.

Board of Directors

Nikki Hahn

Chair
Scarsdale, New York

Kristine Alderfer

President
Winona Lake, Indiana
Denise Koch

Denise Koch

Secretary of the National Leadership Council
Ottawa, Illinois

Justin Whitney

Treasurer
Yarmouth, Maine

Shari Hume, MBA

Co-Founder and Director
Encinitas, California

Tom Hume, MA

Co-Founder and Director
Encinitas, California

Tim Shelby, JD

Director
The Woodlands, Texas

Brent Hauser

Director
Austin, Texas

Dr. Van Ness, PH.D., DHSc, PA-C

Director
Bayport, New York

Karen Berman, MBA

Director
Oak Park, Illinois

Zachary Harrison

Director
Hilliard, Ohio

Randy Putt

Director and Chair of the Grandparent Council
Lafayette, Indiana

Dave Maher

Director and Chair of the National Leadership Council
Estero, Florida
Michelle Best

Michelle Best

Director
Arlington, Virginia
Debbie Daum

Debbie Daum

Director
Rye, New York
Emily Ciaran

Julie Houpt

Director
Dallas, Texas
Anna Ramsey

Anna Schwartz-Ramsey

Director
Los Angeles, California

Mitali Dave, MS, MBA

Chair Emeritus
Short Hills, New Jersey

Medical Advisory Board

Lisa G. Rider, M.D.

Lisa G. Rider, M.D.

Chair of the Medical Advisory Board, Head Environmental Autoimmunity Group, National Institute of Environmental Health Sciences, National Institutes of Health

Brian Feldman, M.D., MSc, FRCPC

Vice Chair of the Medical Advisory Board, Head Division of Rheumatology Hospital of Sick Children, Toronto

Lucy R. Wedderburn, Ph.D, MRCP

Director, Arthritis Research Centre for Adolescent Rheumatology University College London (UCL)

Anne Stevens, M.D., Ph.D

Senior Director, Immunology Janssen Research and Development

Ann M. Reed, M.D.

Department of Pediatrics Duke University School of Medicine

Lauren M. Pachman, M.D.

Professor of Pediatrics Northwestern University Feinberg School of Medicine

Kanneboyina Nagaraju, DVM, MVSc, Ph.D.

Dean and Professor, Pharmaceutical Sciences Binghamton University, State University of New York

Susan Kim, M.D., MMSc

Associate Clinical Professor of Pediatrics University of California, San Francisco

Adam Huber, M.D., M.Sc.

Professor of Pediatrics Dalhousie University, Halifax, Nova Scotia
Stacey Tarvin, M.D.

Stacey Tarvin, M.D.

Program Director, Pediatric Rheumatology Riley Hospital, Chair of Cure JM’s Clinical Care Network

Andy Mammen, M.D., Ph.D.

Associate Director, Johns Hopkins Myositis Center Investigator, National Institutes of Health

Staff

Jim Minow

Executive Director

Andrew Heaton, Ph.D.

Chief Scientific Officer

Shannon Malloy

Director of Development and Community Engagement

Suzanne Edison, M.A., M.F.A.

Mental Health Coordinator
Ryan King

Ryan King

Communications

Lauren Alvord

Clinical Care Network Manager

Dawn Moltzan

Development, Operations, and Data Manager

Betsy León

Development Associate
Nicole Ryba

Nicole Ryba

Chapter and Walk Manager

Tayler-Ann Brull

Communications Associate

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