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Cure JM Foundation National Leadership Council

Meeting

The Cure JM National Leadership Council is the organization that provides leadership for Cure JM to succeed in communities across the country. It is a crucial part of Cure JM's strategic planning and strategy implementation and provides the platform for leaders to raise the funds required to accelerate research progress. It is comprised of all regional chapter presidents, walk chairs, and family support network representatives, and fundraising leaders in the Cure JM Community.

The National Leadership Council meets formally on a quarterly basis, including a half-day strategy session at the National Family Conference.

For more information please contact Nikki Hahn, Cure JM Board of Directors and President of the National Leadership Council at or Shannon Malloy at .

National Leadership Council Slide Show


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National Leadership Council:

President: Nikki Hahn (New York Chapter)

Northeast Chapters, Walks, and Fundraising Committee

Chapters Included:

 New York, Washington D.C., Massachusetts, and Philadelphia

Committee Chair:

Amy Blitz (NY Walk)

Committee Vice-Chair:

Kate and Dave Ettingoff (Philadelphia Chapter)

Committee Vice-Chair:

Simonetta D'Onofrio (D.C. Walk)

Committee:

Kevin and Doreen Coffey (NY Chapter)
Michelle Best (D.C. Chapter)
Tracy Van Ness (NY Walk)
Chris Bokis (Mass. Chapter)
Melissa Corey (Mass. Walk)
Keri and Ron Bernstein (NY Chapter)
Nikki Hahn (NY Chapter)
Stephanie Brown (Mass. Chapter)
Colleen and Chuck Marchetta (Fundraiser, NY)
Justin and Amy Whitney (Fundraiser, ME)
David and Kathryn Maher (Fundraiser, CT)
Paul Jacoby (Fundraiser, NY)
Allison Moore (Fundraiser, NY)
Amber Davis (Family Support Network)
Erin Duval (Family Support Network)

Midwest Chapters, Walks, and Fundraising Committee

Chapters Included:

Chicago, Ohio/Pittsburgh; Minnesota

Committee Chair:

Lisa Forgas (OH/ Pittsburgh Chapter President)

Committee Vice-Chair:

Zack and Sandi Harrison
(OH/Pittsburgh Chapter Vice Presidents)

Committee Vice-Chair:

Denise Koch (Chicago Chapter President)

Committee:

Jen Coe (Chicago Chapter/Walk)
Kelly Florido, R.N. (Chicago Walk)
Danielle Harris (Minnesota Chapter)
Joleen Johnson (Minnesota Walk)
Erin Curtis (OH/Pittsburgh Chapter)
Caesy Sauder (Chicago Walk)
Denise Hooper (Chicago Walk)
Sharon Ortega (Chicago Walk and Family Support for Spanish Speaking Families)
Rachel Lebensorger (Fundraiser, IL)
Tyla McMullen (Fundraiser, WI)
Julie Garst (Family Support Network)


Southern Chapters, Walks, and Fundraising Committee

Chapters Included

Central Texas, Houston, Dallas, Louisiana, and Florida

Committee Chair

Kristen Prescott (Louisiana Chapter)

Committee Vice-Chair

Jenny and John Kara (Dallas Chapter)

Committee Vice-Chair

Melissa and Tim Shelby (Houston Walk)

Committee

Sheila and Harry Harvey (Louisiana Chapter)
Bud and Ryan Sheffield (Houston Chapter)
April Duley (Central Texas Chapter)
Jennifer Howard (Dallas Walk)
Amy Gleason (Florida Chapter)
Denise Rackauskas (Florida Walk)
Ragan Cantrelle (Louisiana Chapter)
Sissy Taylor (Central Texas Chapter)
Danielle Britten (Dallas Chapter)
Cesar De La Canal (Central Texas and Houston Chapters)
Jane Amaba (Fundraiser, TN)
Shari Shobe (Family Support Network)

Western Chapters, Walks, and Fundraising Committee

Chapters Included

Pacific Northwest, Northern California, Southern California

Committee Chair

Christy Coss, MD (Fundraiser, OR)

Committee Vice-Chair

Deema Lopez (Southern California Chapter)

Committee Vice-Chair

Suzy Clement (Northern California Chapter)

Committee

Damon Smedley (Fundraiser, OR)
Sue Carpenter (Northern California Chapter)
Brent and Emma Hauser (Northern California Chapter)
Jana Sall (Pacific Northwest Chapter)
Julie Shevlin (Pacific Northwest Chapter)
Carol Schwartz and Rob Ramsey (Southern California Chapter)
Miranda and Alonzo Alvarez (Pacific Northwest Walk)
Victoria Robinson (Northern California Chapter)
Natalie Strong (Fundraiser, WY)
Kathy Yates (Fundraiser, AZ)


National Grandparent Council

Committee Chair

Merrianne Van Ness (NY Chapter)

Committee Vice-Chair

Laurel and Chuck Krider (Fundraiser, CO)

Committee Vice-Chair

Susan and Dave Erickson (Fundraiser, VA)

Committee

Marge Coffey (NY Chapter)
Sheila and Harry Harvey (Louisiana Chapter)

National Legacy Society Committee

Alan Alderfer (Fundraiser, IN)
Walter McKeever (NY Chapter)

International Family Support Network

Suzanne Edison (International Family Support Network)
Aimee McCloskey (Family Support Network Australia/NZ)