15 Years Strong. Cure JM.

We're celebrating fifteen years of extraordinary progress fueled by the focus and determination of engaged volunteers, leaders, families, patients, physicians and researchers.

Determination is at our core.

In October of 2003, Shari and Tom Hume and Lisa Felix, parents of children with JM, and Harriet Bollar, grandmother of a child with JM, started this foundation. Brought together by circumstance, they founded Cure JM with the same goal that fuels our mission today: to find a cure and better treatments for Juvenile Myositis and improve the lives of families affected by JM.

Lemonade Stand

It all started with a Lemonade Stand

The first fundraiser was a modest lemonade stand in Encinitas, California. Soon after, the Foundation established a website to provide information and emotional support for families impacted by the disease.

Since that humble lemonade stand, we’ve not only grown, but we’ve made a collective, substantial impact, including:

  • Raised over $12 million for research and educational programs.
  • Launched fifteen Regional Chapters that connect our nearly 3,000 families with peer support, education and fundraising events.
  • Assembled a group of internationally renowned researchers and clinicians to direct our Medical Advisory Board (MAB), which drives our scientific direction and also consults with clinicians who request guidance in the treatment of a patient.
  • Provided vital resources and connections for over 3,000 patients and families in 45 countries.
  • Funded over 160 critical research studies moving us closer to a cure.
  • Worked with the medical community to raise awareness of JM and developed online resources to reduce diagnosis time to three months.
  • Partnered with Center for Applied Genomics at Children’s Hospital of Philadelphia to identify genes that play a role in JM, with the ultimate goal of finding drug interventions to treat JM.
  • Funded research at twenty prestigious research institutions in three countries.
  • Established research centers at Ann & Robert H. Lurie Children’s Hospital of Chicago and George Washington University in Washington, D.C. and recently designated centers at the Duke Children's Hospital & Health Center and Seattle Children’s Hospital.
  • Co-produced the first-ever book on JM, Myositis and You, featuring contributions from over 80, international medical professionals.
  • Invested in a three-year drug development program at National Center for Advancing Translational Sciences to support the screening of hundreds of thousands of new drugs, as well as existing drugs currently used in the treatment of other diseases, to determine their possible usage in the treatment of JM.
  • Partnered with the Childhood Arthritis and Rheumatology Research Alliance (CARRA), a group of 500 North American pediatric rheumatologists, researchers, and other health care professionals, to launch a multi-center JM patient registry to enable studies that will ultimately help JM families make more informed decisions on treatment options.
  • Launched the National Leadership Council, which is comprised of all regional chapter presidents, walk chairs, family support network representatives, and fundraising leaders in the Cure JM Community. The council provides a platform for leaders to raise much-needed funds required to accelerate research.

HopeDespite this enormous progress, we’re focused on the next fifteen years.

It will take everyone’s participation to drive us towards greater advancement. We are living in times of significant scientific potential. The field of genetic research alone holds great promise for the lives of people living with JM. As a community, we must harness this potential for the benefit of those living with JM.

One of our founders, Shari Hume, recently said, “When we started this organization we were hopeful, but uncertain we could find a cure for JM in our children’s lifetime. Now, based upon working with the world’s top researchers, raising awareness, and building an amazing community of dedicated families, I’m certain we WILL find a cure.”

As we look to the future, we will need the same determination that fueled our founding. Our collective, extraordinary commitment will move our mission forward.

This is an important milestone and we plan to mark it for months to come. Look for more recognition and celebration of this important milestone in the coming months.