Contact Us | Site Map
Raising Awareness, Supporting Families, Funding Research, Finding a Cure
DONATE
SHOW MENU HIDE MENU
  • Our Role & Impact

    About Cure JM

    • Our Story
    • Our Milestones
    • Our 2019 Impact Report
    • Our Financial Information
    • Regional Chapters

    Newsroom

    • Executive Director Reports
    • Monthly Family News
    • Event Photos
    • Cure JM in the News
    • Press Releases

    Leadership

    • Board of Directors
    • Medical Advisory Board
    • Regional Chapter Presidents
    • National Leadership Council
    • Honorary Advisory Council
    • Family Support Network Contacts
    • Grandparent Support Representatives
    • Fundraising Coaches
    • Cure JM Staff
    • Awards

    Multimedia

    • Cure JM Videos
    • Video for the Newly Diagnosed
    • Cure JM Event Photos
    • Myositis and You Book
    • Downloadable Brochures
    • Welcome Kits
  • About JM

    Juvenile Myositis Info

    • What is JM?
    • JM Links

    Photos

    • Signs and Symptoms of JM
    • The Faces of JM
    • Cure JM Angels
  • For Families

    Resources

    • Welcome Kit
    • Newly Diagnosed: Helpful Info
    • Newly Diagnosed: Video
    • Find a Doctor
    • Mental Health Resources
    • Newsletters
    • Cure JM Videos
    • JM Family Stories
    • JM Patient Online Journals & Other Links
    • Sample Medication Chart
    • Cure JM Conference Recaps

    Rehab Resources

    • Stretching Video

    Stay Connected

    • Regional Chapters
    • Regional Contacts
    • Family Support Network
    • Grandparent Support Network (C.A.R.E.)
    • Team JM Fundraising Network
    • Teen Portal
    • Events in Your Area
    • Social Media
    • Cure JM Conference

    Navigate the System

    • Top Ten Tips from JM Families
    • Health Insurance Tips & Links
    • School Resources
    • Social Security Resources
    • Other Government Resources
    • Sun Protection Products & Resources
    • Advice from JM Families
    • Q & A with a Child Life Specialist
    • Child’s Checklist for Dr. Visits

     

     

    •  
  • Healthcare Pros

    Support

    • Healthcare Professionals Homepage
    • Medical Advisory Board
    • Join the Cure JM Medical Network

    Grants & Fellowships

    • Research Funding/Grant Opportunities
    • Cure JM Grant Recipients
    • NEW! Research Fellowships

    CME Opportunities and Conferences

    • Accredited CME Activities
    • Cure JM Medical Conference

    Treatment

    • Consensus Protocols for JDM
    • Cure JM Research & Treatment Centers

    Research

    • Current Cure JM Funded Research
    • Published Research Studies
    • Cure JM Research & Treatment Centers
    • Other JM Research
    • Funding Opportunities for Researchers
    • Q & A with Latest Grantees
    • Studies Needing Volunteers

    Resources

    • Myositis and You eBook
    • Cure JM Conference Recaps
    • Cure JM Medical Network Newsletter
  • Research

    Cure JM Research & Treatment Centers

    • Cure JM Centers of Excellence

    Cure JM Survey Results

    • Early Diagnosis Initiative

    JM Research Studies

    • Cure JM Currently Funded Research and Grant Recipients
    • Cure JM Fellowship Recipients
    • Published Research Studies Supported by Cure JM
    • Cure JM Conference Recaps
    • Cure JM Funded Research 2006-2013
    • Additional JM Research

    JM Patients Needed

    • Research Studies Needing Volunteers
    • Patient Powered Research Network

    Funding Opportunities

    • Cure JM Research Grants: Eligibility and Requirements
    • Cure JM Fellowships
  • Get Involved

    Events

    • Walk Strong Across America®
    • Events in Your Area
    • National Conference and Fundraiser

    Connect

    • Join Cure JM
    • Regional Chapters

    Donate

    • One-Time Gift
    • Monthly Gift
    • Legacy Gift
    • Other Ways to Give
    • Printable Donation Form
    • Combined Federal Campaign

    Fundraise

    • Join Team JM Fundraising Network
    • Set-up a Family Fundraising Page
    • Fundraising Guidelines & Application
    • First 4 Steps for a Fundraiser
    • 54 Fundraising Ideas
    • Fundraising Toolkits
    • Fundraising Coaches
    • Fundraising Video
    • Impact Report for Sponsors
    • Awareness Tools
    • Attracting Media Coverage

    Participate in Research

    • Research Studies Needing Volunteers
    • Patient Powered Research Network

    Show Your Support

    • Cure JM Store
    • Shop at Amazon, iGive, etc.

    Join

    • Team JM
    • Grandparents CARE
    • Patient Registry / Family Support Network



Share/Bookmark

Cure JM Foundation Newsletter

Cure JM Newsletter: Volunteers

March 2016

Facebook Twitter LinkedIn YouTube Email

DONATE NOW

Cure JM's 9th National Conference and Fundraising Event in St. Pete Beach, FL

Cure JM Medical Advisory Committee members Dr. Lauren Pachman, Dr. Lisa Rider, Dr. Susan Kim, and Dr. Adam Huber answer family questions during the General Session.

In January, Cure JM held it's 9th National Family Educational Conference and Fundraising Event.

Over 85 Cure JM families came together with Juvenile Myositis experts from across North America for the weekend.  

Families enjoyed time to connect with other families as well as educational sessions on a wide-variety of topics related to Juvenile Myositis research and care.

Families also had the opportunity to provide input in three different sessions where researchers needed to hear directly from families.

And a special thank you to the dedicated volunteers who made the Cure JM Conference possible.  It would not have been possible without the sacrifice and hard work of each volunteer.  

View the complete Conference Recap here.

Conference Recap from Jim Minow

Jim Minow, newly-named Cure JM Executive Director, pictured here speaking during the Conference's General Session.

As you recently heard, Cure JM is excited to announce it's first-ever Executive Director, Jim Minow.

Jim brings over 20 years of non-profit experience to Cure JM and has experience bringing new cures to other rare diseases.  

"We're excited to have Jim lead the fight for better and more effective treatments at Cure JM," says Cure JM co-founder Shari Hume.  "And with Jim's passion to "make things happen, I'm confident that you'll see real and faster progress toward more effective treatments."

Read Jim Minow's complete Conference Recap here.

Save the Date, Y'all!

The next Cure JM National Conference and Fundraising Event will be in Austin, Texas, February 17-19, 2017.

 

 

Cure JM's National Conference is Coming to Austin, Texas, February 17-19, 2017.

Join fellow Cure JM families from around the world in Austin, Texas for a spirited weekend of knowledge, sharing, and new friendships.  

The weekend will be focused on our unified effort to find a cure for Juvenile Myositis and improve the lives of families affected by Juvenile Myositis.  

All patients, caregivers, and extended family of those coping with JM (including Juvenile Dermatomyositis and Juvenile Polymyositis) are invited to attend.

The Conference will include:

  • NEW!  A fun family-friendly Cure JM Walk to raise funds for JM research.
  • NEW!  More fun activities for teens and young adults to enjoy while connecting with each other.
  • Intimate Break-out Sessions about coping with real life issues facing JM patients, families and caregivers.
  • An Educational Forum with Juvenile Myositis Researchers.
  • The Austin Marathon and Half Marathon, where Cure JM runners and walkers will help raise funds for JM research. 

More information is coming soon.

The Reece Family's First Cure JM Conference

Kid's Camp

Katelyn enjoying the Kids' Fun Camp activities and all of the new friends she met.

The Reece family celebrates the collective achievements of the Cure JM community at the Cure JM Family Recognition Dinner

Just 11 months after their daughter was diagnosed with JM, the Reece family attended the Cure JM conference in January.

The Cure JM Conference offered Billy and Laura the chance to meet over 100 other parents and grandparents of children with JM.

Katelyn also met dozens of kids her own age.  

"I am so glad we attended.  We left the conference feeling more connected, informed, and hopeful for the first time since Katelyn's diagnosis," Laura explained.  

"It was so nice hearing other families' paths on this journey and sharing stories and experiences with one another," said Billy.

At the Cure JM National Conference and Fundraising Event, Laura and Billy attended educational sessions about how to care for their JM child and family, including a session just for newly diagnosed families.

"We're just a regular family, but we're going to make a difference however we can, says Laura. "Meeting the other families and physicians who are fighting for a cure was so uplifting."

Kids' Fun Camp at Cure JM's National Conference

Over 70 kids enjoyed the supervised Kids' Fun Camp, having fun while making new friends who understand them.

 

This year's Kids Fun Camp featured a Star Wars theme!

 

Over 70 Cure JM kids and siblings, age 3-10, came together for a Star Wars-Themed Kids' Fun Camp.

The camp was taught by a team of elementary school teachers who led the kids in a fun-filled day of Star Wars activities.

The day was capped off with a visit from real-life Star Wars Characters.  The children were all surprised when the Star Wars Characters showed up!     

"It was AWESOME," said Tristan, age 5.  "Totally epic!"

For the parents -- and many of the researchers -- one highlight of the weekend was watching the kids perform a song and dance to the inspirational song "Fight Song" by Rachel Platten.  

View the performance here

 

Teen and Tween Highlights

Over 50 teens and tweens came together for the weekend, many participating in the one-day Teen and Tween Photography Workshop

 

Over 3 dozen teens, tweens and young adults also came together to participate in their own events including: 

  • A Transition to Adult Care Workshop
  • A Teen Photography Workshop
  • A Teen-Only Session where teens could connect and share with each other

"Teens have their own distinct needs," says Kristine Alderfer, Cure JM Board Member and adviser to the Teen Council.  "Cure JM is working to increase the services we offer for teens who will soon be transitioning to independent management of their health."  

Look for more information coming soon on Cure JM's teen education and support initiatives.  

Race Highlights from St. Pete Beach, Florida

8 year-old JM warrior Bradley crosses the finish line in the 5k race. Congratulations, Bradley!.

Over 300 runners, walkers, and volunteers had fun and raised funds for JM research at the Walgreens St. Pete Beach Classic.

Nearly 300 Cure JM runners and race volunteers braved both sun and rain to represent Cure JM in the Walgreens St. Pete Beach Classic. 

Cure JM families participated in the Kids' Fun Run, 5k, 10k, and half-marathon to have fun, raise funds for research, and spread awareness of Juvenile Myositis.

Families had fun racing and empowered themselves by raising funds to make JM research possible. 

The National Conference is one of the biggest fundraisers of the year -- Cure JM families raised over $600,000 for JM research over the last few months!

Families participated by raising funds as part of the National Conference, participating in the Holiday Challenge, or holding an event in their hometown.

"JM research is made possible by Cure JM families stepping forward to get involved," says Cure JM Chairman Rhonda McKeever.  "We are grateful to every family that raised funds."

Call to Action from Cure JM Chairman Rhonda McKeever

Cure JM Families like the Galvins make JM research possible by getting involved and hosting a lemonade stand to benefit Cure JM.

Cure JM Families,

As we conclude the 2016 national conference, I am asking for your help.

As families heard at this year's conference, the participation of each family is crucial to moving JM research forward. 

Cure JM was created by just a few JM families taking the courageous initiative to create this organization in 2003.  Since 2003, through the collective efforts of the Cure JM community, we have made incredible progress with JM research, have fostered infinite acts of kindness and support for JM families, and have created broader JM awareness, particularly in the medical community.

Your action now is critical to moving research forward in 2016.  So, I ask all of you, how can you help or who do you know who can help?

Contact us at info@curejm.org or (760) 487-1079 and we will reach out to you to discuss your interests. 

Sincerely,

Rhonda McKeever

Chairman, Cure JM Foundation

Cure JM National Conference

Cure JM’s 10th National Conference
February 17-19, 2017
Austin, TX

Upcoming Events

Chicago Meet & Greet with Cure JM Executive Director Jim Minow
Sunday, April 3, 2016
Hoffman Estates, IL

Parasol Parade Walk to Benefit Cure JM
Saturday, April 30, 2016
Warsaw, IN

Washington Walk for Kids Kickoff Party
Sunday, May 15, 2016
Woodinville, WA

2nd Annual Gracey Fest
Sunday, May 22, 2016
Mount Washington, KY

3rd Annual Cowboy Brad Concert for Cure JM
Saturday, June 25, 2016
Estes Park, CO

Mud Run with Team Cure JM
Saturday, July 9, 2016
Killington, VT

4th Annual Texas "Mini Conference"
Saturday, July 23, 2016
Martindale, TX

2nd Annual Evening Under the Stars
Saturday, August 6, 2016
Warsaw, IN

Annual Garage Sale to Benefit Cure JM
Friday-Sunday, September 9-11, 2016
Lake Stevens, WA

Inaugural Washington Walk for Kids
Saturday, October 8, 2016
Redmond, WA

Basket Raffle to benefit Cure JM
Sunday, October 16, 2016

Ticonderoga, NY

5th Annual Holiday Shop for a Cure
Saturday, November 5, 2016
Warsaw, IN

Melinda's Wish benefiting Cure JM
Sunday, April 23, 2017
Chicago, IL

Cure JM’s Mission

To find a cure for Juvenile Myositis and improve the lives of families affected by JM.

Thank you to the generous sponsors who made Cure JM’s recent Family Educational Conference possible:

Idera  PharmaceuticalsDun and Bradstreet Alderfer Bergen Retirement Planning FedEx Borrow Lenses JMC Services Incorporated LogoZimmer BiometWismettac

Support Cure JM when you shop online with Amazon SmileAmazon Smile

Newsletters

Current Newsletter

Past Newsletters

January 2021

December 2020

November 2020

October 2020

September 2020

August 2020

March 2020

February 2020

January 2020

December 2019

November 2019

October 2019

September 2019

August 2019

July 2019

June 2019

May 2019

April 2019

March 2019

February 2019

January 2019

December 2018

November 2018

October 2018

September 2018

August 2018

July 2018

2018 National Family Conference Recap

June 2018

May 2018

April 2018

March 2018

February 2018

November 2017

October 2017

September 2017

August 2017

June 2017

May 2017

April 2017

March 2017

February 2017

January 2017

November 2016

October 2016

September 2016

August 2016

July 2016

June 2016

May 2016

April 2016

March 2016

February 2016

January 2016

October 2015

September 2015

July 2015

June 2015

May 2015

April 2015

March 2015

November 2014

August 2014

August 2014 Family Version

July 2014

June 2014

May 2014

March 2014

February 2014

October 2013

August 2013

May 2013

Spring 2013

Fall/Winter 2012

Summer 2012

Spring 2012

2011 Holiday Message

December 2011

November 2011

Fall 2011

July 2011

May 2011

March 2011

February 2011

January 2011

December 2010

November 2010

News & Events

Recent News

Upcoming Events

Cure JM in the News

Cure JM Newsletter

Team JM Homepage

Cure JM Foundation Nonprofit Overview and Reviews on GreatNonprofits
Top-Rated Since 2011
Guidestar Exchange
BIA Seal

CONTACT US

Cure JM Foundation
19309 Winmeade Drive
Suite 204
Leesburg, VA 20176
(202) 596-6267

Donate Now

IRS Tax ID #35-2222262
Corporate Matching Donations
Privacy Policy
Non-Discrimination & Inclusion

This website is provided for educational and informational purposes only. Cure JM is not engaged in rendering medical advice or professional services and this information should not be used for diagnosing or treating a health problem. The site author and the content providers make no representation or warranties, expressed or implied. Providing links to other websites does not imply that Cure JM endorses the information or services provided on those websites. The organizations operating those websites are solely responsible for the content found on their websites.
©2004-2021 Cure JM Foundation. All rights reserved.

Privacy Policy | Non-Discrimination Policy | Legal Disclaimer | Contact Us