Family News

What Parents Should Know About IVIg (Intra-Venous ImmunoGlobulin)

The questions about what to do before and post-IVIg to prevent side effects come up often. We know that IVIg can be a very beneficial treatment for JDM, yet it is not without potential side effects. Please read further to minimize the event’s trauma and prevent side effects, e.g., nausea, severe headaches, etc.

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing the demands of a career with the responsibilities of caregiving is a challenging task for any parent. For those with a child diagnosed with juvenile myositis (JM), a rare autoimmune disease affecting children, the challenge is heightened. Juggling work commitments while providing the necessary care and support for a child with JM can be taxing. In this article, we hope to provide you with a few effective strategies and insights to help working parents navigate this delicate balance.

Livy and Gianna’s Enduring Friendship

Building friendships with others in the JM community can be difficult. Since JM is a rare disease, medical common ground might be a state away.

Read the Newsletter

What Parents Should Know About IVIg (Intra-Venous ImmunoGlobulin)

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Livy and Gianna’s Enduring Friendship

Join Cure JM

Families

Physicians

Cure JM

Get Involved

Interested in DIY fundraising but need help?

We’re here to help!