Chief Scientific Officer
Cure JM Foundation

Position Description

The Chief Scientific Officer (CSO) provides strategic oversight, guidance, and leadership to the Cure JM research program.  The CSO is responsible for the timely and effective implementation of the Cure JM Research Priorities as adopted by the board of directors, principally through a grants program supporting basic, translational, and clinical research and Cure JM-funded Centers of Excellence.


  1. Advancing Research Priorities in Juvenile Myositis

    The CSO:

    1. Creates and fosters collaboration among the international research community not only in juvenile myositis research but also with related autoimmune research where discoveries may have value to the understanding and treatment of JM.  Key institutional collaborators include the Childhood Arthritis and Rheumatology Research Alliance (CARRA), the Global Conference on Myositis (GCOM), International Myositis Assessment and Clinical Studies Group (IMACS), Pediatric Rheumatology European Society Working Party (PRES), the Pediatric Rheumatology International Trials Organization (PRINTO), the Arthritis Foundation, and the American College of Rheumatology (ACR), American Association of Autoimmune Related Diseases (AARDA).
    2. Provides oversight and management of specific collaborations including those with CARRA for the JM Patient Registry and a proposed project for a JM biorepository, both funded by Cure JM.  The CSO works with CARRA to assure the patient registry meets enrollment, data quality, and growth objectives while also assuring data is accessible to the domestic and international research community as well as the pharmaceutical and biotech industries.
    3. Strategically advances research and clinical care initiatives such as improving access/cost reduction to Myositis-Specific Autoantibody testing, access to mental health screening and interventions, environmental factors, biomarkers, deeper knowledge of predictors of flare, long-term outcomes, and other targeted initiatives within the Cure JM Research Priorities.
    4. Fosters an environment among academic and private sector researchers that accelerates progress in pre-translational and translational research leading to more clinical trials, in part through effective collaboration with companies with an expressed interest in therapeutic development or repurposing for JM treatments.
    5. With the Executive Director, develops institutional relationships with pharmaceutical and biotech companies with products used in the care and management of autoimmune diseases (e.g. IVIG, corticosteroid manufacturers; biologics used in RA), or with products in the development pipeline.
    6. Acts as a Cure JM liaison to the Medical Advisory Board, assuring that the MAB is appropriately engaged in its advisory role and that Cure JM is maximizing the value of the MAB’s medical and research expertise.  With the Chair of the MAB and Chair of the Cure JM Research Committee, develop agendas for MAB meetings and provide all necessary background materials.
    7. Other collaborations may include those with major research organizations in related pediatric or adult autoimmune diseases.
  2. Oversight of Cure JM Grant Program
    1. Provides leadership to and strategic implementation for Cure JM’s Research Priorities which include a more targeted RFP approach to assure that basic and translational objectives are being addressed by the research community.
    2. Oversees the Cure JM grant process,* which includes a Request for Proposal (RFP) phase, receipt of applications, and coordination and scoring of grant applications by the Scientific Review Committee, and solicitation and receipt of reviews from other scientific experts.
    3. Oversees the awards process, negotiates with principal investigators, contracts with institutions, reviews and clarifies progress reports and final reports. 
    4. Provides professional assessment of all funded projects in meeting research objectives to the Cure JM Research Committee and Board.
    5. Provides management and oversight for the selection and administration of Cure JM’s Fellowship and Early Career Investigator awards.*
    6. Assures effective use of Research/Clinical Care funding within Cure JM’s Centers of Excellence.*  Develops expansion/implementation strategy for additional centers consistent with Cure JM’s Center plan, with consultation from the MAB.

    *Currently, Cure JM grant funds are awarded in three processes—a open call for one-two year grants, applications for two-year Fellowships Fellowship and early Career Awards, and renewable Center of Excellence awards. 

  3. Resource to JM Families
    1. Serves as the senior convener and manager of the Cure JM Medical Conference, held annually in conjunction with the Cure JM Family Conference.
    2. Works with the Family Conference Chair and Committee members to develop medical and research presentations at the Conference.
    3. Serves as a resource to families through comprehensive knowledge of JM clinical care and ability to connect families with leading JM specialists throughout the U.S. and internationally.
    4. Meets with families through structured Cure JM Chapter meetings approximately six times per year. 
  4. Budget
    1. Oversees and manages the research portfolio budget.  Prepares grant allocations requests and/or payments for the approval of the Executive Director and Treasurer for payment.
  5. Research and Medical Content Development
    1. With the Executive Director and the Communications Manager, develops appropriate communications for lay and donor audiences of scientific and medical progress be made through Cure JM research investments, as well as progress in the field generally.  This assessment of grant effectiveness and research outcomes is critical to donors understanding the impact of their philanthropy.
    2. Serves as the Scientific Spokesperson for Cure JM, often in collaboration with the chair of the MAB, MAB members, the Scientific Review Committee, or the chair of the Research Committee.
    3. With Communications Manager, develops and reviews content for the Science/Research/Patient Care sections of the Cure JM website, Impact Report, and other publications.
    4. With the Communications Manager, develops and reviews content for regularly scheduled Medical Network Newsletter.
    5. Serves as consulting editor/reviewer of new edition of Myositis and You (to be published 2018).
    6. Provides periodic updates to Cure JM volunteer groups (Leadership Council, Chapter and Walk leaders) by teleconference.
  6. Collaboration with Federal Agencies
    1. Serves as the lead facilitator in the creation or expansion of collaborative relationships with federal research or oversight agencies, especially the NIH and FDA.  Will manage relationships with specific NIH research units including, but not limited to, the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS), The National Institute of Environmental Health Sciences (NIEHS), National Center for Advancing Translational Sciences (NCATS), as well as other institutes engaged in autoimmune research.  At the FDA, key relationships are with the Office of Orphan Products Development.
    2. Investigates other collaborative research and funding opportunities within government agencies such as medical research programs within the Department of Defense, Agency for Healthcare Research and Quality, and the Center for Disease Control.
  7. Other Duties
    1. Other Duties
    2. Serves as staff on the Research Committee, Scientific Review Committee, and Medical Advisory Board.
    3. Remains current on research publications in JM and related autoimmune diseases.
    4. Other duties as assigned.


  • M.D. or Ph.D. in Biological Science, Immunology, Pharmacology, or related sciences.
  • 10 years post-degree experience in disease research or drug development within a major research institution, medical research organization, or private industry, preferably in rheumatology and/or autoimmunity.
  • A proactive approach to leadership.
  • Previous experience in grant oversight and administration preferred.
  • Fundamental understanding of the interactions between basic, translational, and clinical research with a bias toward moving research to clinical trials. 
  • Previous experience collaborating with government agencies (NIH, FDA) desirable.
  • Previous experience working in or collaborating with the pharmaceutical and biotech industries preferred.
  • Strong interpersonal skills and ability to build, influence, and orchestrate a global community of researchers and medical providers.
  • Ability to articulate complex science to lay audiences.
  • Ability to travel, including weekends, as needed.

Nominations are encouraged.  Interested candidates should submit their CV along with a cover letter and salary requirements to James Minow, Executive Director, Cure JM Foundation at