One of the ways you can help your children cope with juvenile myositis is by giving them a sense of control over their doctor visits and treatments.
Giving children a checklist makes them a part of the process and helps them to remember to address any concerns they might have.
You can use these checklists “as is” or customize them for your child and medical situation.
Download checklists in a customizable format for your child!
With your financial support, Cure JM is proud to have funded Fionnuala McMorrow, a Postgraduate Research Student in the Department of Life Sciences at the University of Bath, to embark on a critical research project. Fionnuala’s team analyzed blood samples from the UK to investigate two specific biomarkers (anti-CCAR1 and anti-Sp4) recently identified in U.S. patients with JDM and related conditions
This expert-led presentation is for parents about how to help their kids and themselves when their kids express high levels of emotional distress. Our presenters will talk about ways parents can calm themselves, share tips for talking to kids with age-appropriate information, and know when to find help from a professional. There will be a Q&A session immediately following the presentation.
The number of medications used to manage juvenile myositis and its side effects can be overwhelming. Cure JM developed this sample medication chart to help you stay organized.
Membership is free and we’ll connect you with a network of support, encouragement, and resources.
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