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Cure JM National Educational Conference and Fundraising Event

Schedule of Events

Friday, January 15

3:00pm

Registration Opens

4:00pm - 5:30pm

Session for the Newly Diagnosed - Learn More

Teens & Young Adult Breakout Session (suggested ages 14 & up) - Learn More

Focus Group on Upcoming Research - Learn More

Extended Leadership Meeting (by invitation) - Learn More

6:00pm - 9:00pm

Informal Welcome Reception / Dinner
This is a casual meet-and-greet reception, including complimentary appetizers, light dinner, and social time to connect with other families.

Saturday, January 16

Breakout Sessions

Sideswipe to see all breakout sessions.

  Room
10:00am - 11:00am
11:00am - Noon
Noon - 1:00pm
1:00pm - 2:30pm
2:30pm - 3:00pm
3:00pm - 6:00pm
Date Palm (3rd Floor)

Special Session for Grandparents and Extended Family
Learn More

What is JM?
Learn More
Canary Palm (3rd Floor)
Special Session for Dads
Learn More
Nutrition for JM kids & their family
Learn More
Royal Palm
Special Session for Moms
Learn More
Coping Skills for JM Families
Learn More
Breezeway

Tweens and Teens Cyber Cafe and Cure JM photography workshop (ages 11 and up)
Learn More

Opens 9:30 AM

Mediterranean Palm

Adult supervised Kids' Fun Camp for ages 3-10
Learn More

Opens 9:30 AM

Networking Lunch for JM Parents and Grandparents - Royal Palm - Learn More
Lunch will also be provided for all participants in the Breezeway. Parents should pick up children and teens/tweens at noon to take them to lunch.
What Matters to JM Families: Measures of Quality Care - discussion facilitated by CARRA Researchers
Learn More
Teens and Tweens: Transition to Adult Care
Learn More
JM Kids & School Resources
Learn More
Break/Networking

General Session - Royal Palm Ballroom (8th floor)
Welcome / Kick-off
Cure JM's Vision for the Future
CARRA & Cure JM Partnership
Overview of PARTNERS
Research Update
Panel Discussion with Researchers
Kids Entertainment and Photography Project
Closing Remarks

Tweens and Teens Cyber Cafe and Cure JM photography workshop (ages 11 and up)
Learn More
Adult supervised Kids' Fun Camp for ages 3-10
Learn More

 

6:00pm - 7:00pm

Cure JM Cocktail Reception
Foyer

7:00pm - 9:30pm

Cure JM Recogntion Dinner
King and Queen Palm (2nd floor)

Sunday, January 17

7:00am

Walgreens St. Pete Beach Classic Half Marathon

This is a high point of the weekend and all Cure JM families will plan to attend either as a runner/walker or volunteer. Cure JM intentionally plans its annual educational conference around a racing event. We do this for many great reasons:

  • It allows Cure JM families to raise funds and awareness of JM by running, walking or volunteering in honor of their child/grandchild/relative. By fundraising, YOU will move us closer to a cure for your special child battling JM. During this time, the JM community mobilizes and is propelled into action. You will develop a strong sense of camaraderie even before you arrive at the conference. (There is no charge for the educational conference, although we highly encourage all families to fundraise at least $250 each).
  • Our Cure JM team of runners and volunteers will be the biggest group participating in the race events – so our participation will raise great awareness of JM. And, whether you run, walk or volunteer, your participation helps encourage the importance of a healthy lifestyle, and it's FUN doing this with the new JM families you meet at this event!  All races will conveniently start at the Sirata Beach Resort and the Race Director has generously agreed to donate 30% of all Cure JM runners’ registration fees back to Cure JM!  We want to have as many Runners, Walkers and/or Volunteers as possible. There are many races to consider participating in, Kids Dashes, 5K, 10K and the Half Marathon.

Here’s how to get in on the action:

Race Registration (Run or Walk)

Register here to run or walk in any of the Walgreens St. Pete Beach Classic race events as a part of the Cure JM charity team.  You will be asked during the online registration if you are part of Team Cure JM. Important note: Three events directly conflict with the Cure JM General Session and Recognition Dinner (the 5pm Beach Fun Run, the party at Rum Runners and the bonfire hosted by the race organizers). We do hope all our participants take full advantage of our Cure JM events.

Join as a Volunteer on Sunday for the Half Marathon

Not a runner? No problem! You can still get in on the action as part of our Cure JM Volunteer Charity Team on Sunday helping out with the Half Marathon event. We expect to have several fun assignments such as manning a water station or helping at the finishing area. When you complete your Cure JM conference registration, indicate that you wish to be a race volunteer and we’ll provide more details in January. Note, you do not need to complete the volunteer registration on the Walgreens Beach Classic website.

Email with any questions.

 

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