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2016 National Fundraiser

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We are joining the fight against Juvenile Myositis!  On January 17th, we are running in the St. Pete Beach Classic Half Marathon as part of Cure JM Foundation’s National Conference and Fundraising Event in St. Pete Beach, FL.

Hunter was diagnosed with Juvenile Myositis when he was eleven years old and his battle with this disease has been long, hard and painful.  It’s robbed him of his childhood and permanently damaged his physical and mental health.

Juvenile Myositis (or JM) is a disease that causes a child's own immune system to attack healthy tissue and cells, which can cause pain, weakness, inability to walk, disfigurement, organ failure and even lead to death.  Juvenile Myositis can affect virtually any system of the body, the heart, lungs, skin, muscles, and more.  And while our battle with this disease has always been tough, despite all of the hardships, we know we are one of the lucky ones.  Through the Cure JM Conference, we will meet other families who have been torn apart by the financial and emotional stress of this disease and, worse of all, parents who have lost their children.

But together we can make a difference!

Please click here to give. Our family’s goal is to raise $2,000 for life-changing research.

On January 31st, researchers and physicians from across North America will be submitting NEW research proposals to Cure JM.  Your gift now will help make sure that Cure JM is able to fund these new research proposals.  Help us hit our family’s goal to raise $2,000 so that no research is left on the table. 

With endless gratitude, Lynn
P.S. – click here to give and help us reach our goal to raise $2,000.

FYI, Cure JM Foundation is a 501(c)(3) nonprofit organization dedicated to finding a cure for Juvenile Myositis (JM).  Cure JM Foundation is the ONLY organization that solely supports Juvenile Myositis and is the largest charitable supporter of Juvenile Myositis research.  And every gift makes a direct impact – over 90% of donations go directly toward research or educational programs.  With your help, we are making progress towards identifying the causes, best treatments and a cure for Juvenile Myositis.  Your generosity is currently funding JM research at the Mayo Clinic, Boston Children's Hospital, Stanford University, Seattle Children's Hospital, the George Washington University Myositis Center, Children's Hospital at Montefiore, The Research Institute at Nationwide Children's Hospital and The Ohio State University, the National Institutes of Health and the Cure JM Program of Excellence in JM Research at Stanley Manne Children's Research Institute, affiliated with Ann & Robert H. Lurie Children's Hospital of Chicago