Cure JM Foundation 2018 National Family Conference Recap

Impact of JM on Mental Health and Quality of Life

As much as JM can take a toll on the body, it can also take a toll on emotions, self-esteem, and overall mental health.
Suzanne Edison, MA, MFA, and Director, Board of Directors; Vice-Chair, Research Committee of Cure JM, participated in the panel and shared her biggest takeaway from the session.

“There is an array of mental health related issues that may accompany Juvenile Myositis, both the illness, and responses to treatments. As a parent, it is important to be aware of what your child is experiencing and to seek help as needed. Do not discount what you observe and know intuitively as a parent. Seek the help of a qualified social worker or pediatric psychologist for your child or family, as having a chronically ill child affects the whole family in various ways.”

The session featured presentations by Lindsay Borden, Ph.D., Licensed Pediatric Psychologist Assistant Professor, Johns Hopkins University School of Medicine along with Andrea Knight, M.D., MSCE and Kaveh Ardalan, M.D., M.S., Division of Rheumatology, Ann & Robert H. Lurie Children's Hospital of Chicago Instructor of Pediatrics and Medical Social Sciences Northwestern University Feinberg School of Medicine.

Dr. Borden’s Presentation

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Dr. Knight’s Presentation

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Dr. Ardalan’s Presentation

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