2025 Cure JM Family Conference

2025 Family Conference Image

The 15th Cure JM Family Conference is happening June 27th -June 29th, 2025, at the Hyatt Lodge in Oak Brook, Illinois, just outside of Chicago. We’re inviting all families affected by juvenile myositis. That means you and your family are invited!

What You Can Expect:

  • Join live sessions on the latest updates from world-renowned researchers and physicians, including Cure JM’s Medical Advisory Board.
  • Connect with other JM families and create lifelong friendships. 
  • Engage in interactive activities for JM kids, teens, young adults, and siblings of all ages, including activities for patients and siblings aged 18-30.
  • Attend our Volunteer Celebration Banquet & Auction.
  • Join the National Walk Strong To Cure JM, our flagship fundraising and community event.

The conference officially begins Friday, 6/27 at 1pm (registration opens at 9am) and ends with the National Walk Strong to Cure JM event Sunday morning, 6/29 from 9a-11:30a . There are some pre-conference events for some invited guests beginning Thursday evening 6/26. Once you have registered for the event, to secure our discounted conference rate at the hotel, please reserve your hotel room using the link below for the days that match your family’s unique agenda.

Contact James Tealy if you have any questions at james.tealy@curejm.org.

We look forward to seeing you in Chicago, IL, June 27th -June 29th, 2025, for the 15th Cure JM Family Conference!

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing Work and Caregiving: Strategies for Working Parents of Children with Juvenile Myositis

Balancing the demands of a career with the responsibilities of caregiving is a challenging task for any parent. For those with a child diagnosed with juvenile myositis (JM), a rare autoimmune disease affecting children, the challenge is heightened. Juggling work commitments while providing the necessary care and support for a child with JM can be taxing. In this article, we hope to provide you with a few effective strategies and insights to help working parents navigate this delicate balance.

Lemons to Lemonade for Kids Logo

Lemons To Lemonade For Kids

Our Story – Humble Beginnings Twenty-one years ago, Cure JM co-founders Tom and Shari Hume set up the Foundation’s first-ever DIY fundraiser to seed important

Vamorolone FAQ

Vamorolone FAQs in JM

With the looming FDA approval of the drug vamorolone in Duchenne muscular dystrophy, there are questions surrounding the drug’s status for trials in juvenile myositis. We have consulted with JM experts on the potential implications of a pending approval for the drug in another disease and what this currently means for JM patients living in the U.S.

Join Cure JM

Membership is free and we’ll connect you with a network of support, encouragement, and resources.

Cure JM supports families, patients, and the juvenile myositis research community.

Interested in DIY fundraising but need help?

We’re here to help!

To have your fundraiser matched, add “DIY Match” in the memo of your online gift or check.