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Cure JM Foundation 13th Annual National Family Conference and Walk Strong to Cure JM

Sessions

General Session

An elite group of JM experts will give an update on the latest research and answer audience questions.

Kids’ Fun Camp

Throughout the weekend, Children will enjoy their own fun, supervised activities while their caregivers attend breakout sessions. Kids’ Camp can be attended by all JM children and siblings age 3-12. This is an unforgettable weekend of fun and new friendships.

Cure JM Families Being IntroducedSocial Time to Connect with Other Families

  • Family Social Event - Game time!¬† (NEW)
  • Welcome Reception - Meet-and-greet social time where families will meet other Cure JM families in a casual social environment. Heavy appetizers will be provided.
  • Creating Connections Lunch
  • Breaks between Sessions
  • Reception and Kids’ Song Performance for the doctors and parents.
  • Awards Dinner - This family-friendly recognition dinner will celebrate the collective achievements of the JM community and Cure JM volunteers and fundraisers. A complimentary buffet-style dinner will be provided.
  • Sunday Morning “Walk Strong to Cure JM”. Family-Friendly Walk and activities designed to help families have fun while raising funds for JM research.

Time to Connect by Peer Group

  • Grandparent Luncheon for grandparents of JM patients (NEW)
  • Ice-Breaker social activities for tweens, teens, and young adults (NEW)
  • The Father Experience
  • Mothers Supporting Mothers, (Moms of Tweens, Teens and Young Adults)
  • Mothers Supporting Mothers, (Moms of children - Infant to 10 years)
  • Newly Diagnosed Families
  • The Power of the Extended Family - Grandparents and Extended Family Members session
  • Young Adults (18-30 years old) - Meet for Coffee Friday afternoon.
  • Cure JM Young Adults Meet-Up - For Young Adult patients, siblings and spouses; suggested age 18-30. Social time and fun.

WalkersGet involved and Make a Difference

  • Research Participation Opportunity
  • 3rd Annual National Leadership Council Summit
  • Organizing for Local Chapters and Walks
  • Local Walk Committee Meeting

Photo WorkshopSessions for Teens & Young Adults

  • Teen and Young Adult Transition Care (For Caregivers and JM Teens/Tweens age 12+)
  • Teens & Young Adults: Support and Self-Advocating (JM Teens Only, 14+)
  • All Teens Photography Workshop - JM Teens and Siblings (Teens Only 14+),
  • The Siblings Experience (For Siblings of JM Patients Only, 14+)

Educational Sessions for Caregivers

  • Teen Perspective: Q&A Panel for Parents led by Teens
  • Understanding Labs and Treatments: Ask the Doctors
  • Drug Discovery & Emerging Treatments Panel
  • Patient Advocacy: Navigating School, Sports and Community
  • Ways to Manage Sun Exposure
  • How to talk to your doctor
  • Teen and Young Adult Transition Care (For Caregivers and JM Teens/Tweens age 12+)
  • Keeping our JM family healthy: Nutrition, Exercise & Well Being
  • Patient Advocacy - Navigating School and Community

Coping Sessions

  • Impact of JM on Mental Health and Quality of Life
  • Helping Your Kids Cope
  • Coping for Caregivers 101
  • Helping Healthy Siblings Cope

*Session list may be updated, all updates will be communicated via email.


Sponsored By


FedExDun and Bradstreet

Bob and Dixie Slater

Bruce and Judy Leetz

Sheila and Harry Harvey

Alderfer Bergen Retirement Planning

CSI PharmacyJMC
Macworld Trade Group, Inc.Staples