Our Leadership

Cure JM is led by a passionate team of volunteers, staff, and medical experts in juvenile myositis research and care.

Board of Directors

Kristine-Aldefer

Kristine Alderfer

Chair
Winona Lake, Indiana

Justin Whitney

President
Yarmouth, Maine
Denise Koch

Denise Koch

Secretary
Ottawa, Illinois

Tim Shelby, JD

Treasurer
The Woodlands, Texas

Shari Hume, MBA

Co-Founder and Director
Encinitas, California

Tom Hume, MA

Co-Founder and Director
Encinitas, California

Tracy Van Ness, PH.D., DHSc, PA-C

Director
Bayport, New York

Karen Berman, MBA

Director
Oak Park, Illinois

Zachary Harrison

Director
Hilliard, Ohio

Randy Putt

Director and Chair of the Grandparent Council
Lafayette, Indiana
Michelle Best

Michelle Best

Director
Arlington, Virginia
Debbie Daum

Debbie Daum

Director
Rye, New York
Emily Ciaran

Julie Houpt

Director
Dallas, Texas
Anna Ramsey

Anna Schwartz-Ramsey

Director
Los Angeles, California
John Caldwell Web

John Caldwell

Director and Chair of the National Leadership Council
Edmond, OK

Nikki Hahn

Chair Emeritus
Scarsdale, New York

Medical Advisory Board

Brian Feldman, M.D., MSc, FRCPC

Chair of the Medical Advisory Board, Head Division of Rheumatology Hospital of Sick Children, Toronto

Lucy R. Wedderburn, Ph.D, MRCP

Director, Arthritis Research Centre for Adolescent Rheumatology University College London (UCL)

Anne Stevens, M.D., Ph.D

Senior Director, Immunology Acelyrin Research and Development

Ann M. Reed, M.D.

Department of Pediatrics Duke University School of Medicine

Lauren M. Pachman, M.D.

Professor of Pediatrics Northwestern University Feinberg School of Medicine

Kanneboyina Nagaraju, DVM, MVSc, Ph.D.

Dean and Professor, Pharmaceutical Sciences Binghamton University, State University of New York

Susan Kim, M.D., MMSc

Associate Clinical Professor of Pediatrics University of California, San Francisco

Adam Huber, M.D., M.Sc.

Professor of Pediatrics Dalhousie University, Halifax, Nova Scotia
Stacey Tarvin, M.D.

Stacey Tarvin, M.D.

Program Director, Pediatric Rheumatology Riley Hospital, Chair of Cure JM’s Clinical Care Network

Andy Mammen, M.D., Ph.D.

Associate Director, Johns Hopkins Myositis Center Investigator, National Institutes of Health
Lisa G. Rider, M.D.

Lisa G. Rider, M.D.

Chair Emeritus, Head Environmental Autoimmunity Group, National Institute of Environmental Health Sciences, National Institutes of Health

Staff

Jim Minow

Executive Director
Shannon Mallow, staff photo, white background

Shannon Malloy

Director of Development and Community Engagement

Andrew Heaton, Ph.D.

Chief Scientific Officer

Suzanne Edison, M.A., M.F.A.

Mental Health Coordinator
Ryan King

Ryan King

Communications
Ashley Renfrow, RN, NP-C, staff photo

Ashley Renfrow, RN, NP-C

Family and Clinician Education Manager
Nicole Ryba

Nicole Ryba

Chapter and Walk Manager

Betsy León

Development Associate
Sarah Echols, staff photo

Sara Echols

Chapter and Walk Manager

Lauren Alvord

Clinical Care Network Manager

James Tealy

Family Conference Planner
Patty Gauss, staff photo

Patty Gauss

Database and Accounting Administrator

Tayler-Ann Brull

Communications Associate

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