Cure JM Foundation 2017 National Conference and Fundraiser
Patient Advocacy: Navigating School, Sports and Community
Written by Michelle Best, Cure JM Parent and President of the Cure JM Washington, D.C. Chapter
In the workshop, we covered health plans, 504 plans and IEPs (Individualized Education Plans).
For IEP’s we covered: what is the eligibility criteria, how to get the process started, and how to advocate for your chid. In addition, we discussed how to communicate with schools, coaches and other activity leaders and the importance of finding a sport or activity that truly meets the social needs of our kids.
If you have any questions please email
Some additional resources that may be helpful:
- Refer to the book, Myositis and You, available as an eBook or paper copy at www.curejm.org/book
- Cure JM’s school tips & tricks
Below is a recording of the session:
Annual Conference
Lifetime Achievement in Research
Support and Self-Advocating (Teens and Young Adults)
Teen & Young Adult Transition Care
Understanding Labs, Treatments and Side Effects: Ask the Doctor
A Summary of Drug Trials Currently Underway
Mothers Supporting Mothers (Infant - 10)
Mothers Supporting Mothers (Tweens - YA)
Building Your Child’s Self-Esteem
Patient Advocacy: Navigating School, Sports and Community
Organizing for Local Chapters and Walks
