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Save the Date!

Cure JM Families, Save the date!  The 10th Cure JM National Conference will be February 17-19, 2017 in Austin, TX.   

Join over 100 other Cure JM families and prominent JM researchers for a spirited weekend of sharing and connecting with families, physicians, and researchers.  Families will also learn about the latest in Juvenile Myositis research and treatments.

All family members and grandparents of those affected by Juvenile Myositis (JM), including Juvenile Dermatomyositis and Juvenile Polymyositis, are invited to attend.

On Friday and Saturday, families will participate in small-group breakout sessions on a wide variety of topics of interest to Cure JM families.

On Saturdayall participants are invited to attend interactive sessions with an elite group of JM experts who will give an update on the latest research and answer audience questions.  

On Sunday, families will fundraise for Cure JM by running or walking in the Austin 1/2 Marathon and Marathon.  And NEW this year Cure JM will be holding a Family Walk in addition to the marathon!  The walk will be FUN for all ages and all families can participate together.  More information coming soon.

Throughout the weekend:

  • Families will get the latest information on Juvenile Myositis diagnosis, treatment, and research, participate in small group educational sessions and connect with other Cure JM families
  • Grandparents and extended family will get the latest information on Juvenile Myositis and attend a Grandparent Workshop focused on the special role that grandparents and extended family play in their families and the Cure JM community
  • Children will enjoy their own fun activities while their caregivers are in the educational sessions -- and back by popular demand, the Kids' Fun Camp will feature a Star Wars theme and fun for all Cure JM children and siblings age 3-10
  • Teens & Tweens will enjoy a Teen photography workshop, designed for patients and siblings to have fun and connect with each other while learning the basics of photography.  Teens & tweens can also attend a teen-only breakout session and a workshop on transitioning to adult care
  • Young Adults will connect with other young adults with JM throughout the weekend in a variety of ways, including a Young Adult Coffee, suggested for ages 18 and up

We look forward to seeing y'all in Austin, Texas!

Sincerely,

Kristine Alderfer

Cure JM Board of Directors

kristine.alderfer@curejm.org

 


Thank you to the generous sponsors who made Cure JM's recent Family Educational Conference possible:

Idera  PharmaceuticalsDun and Bradstreet Alderfer Bergen Retirement Planning FedEx Borrow Lenses JMC Services Incorporated LogoZimmer BiometWismettac