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The 10th Cure JM National Educational Conference and Family Fundraising Event will be February 17-19, 2017 in Austin, Texas

Join over 100 other JM families and prominent JM physicians, researchers, and patient advocates for the biggest and best Cure JM Family Educational Conference and Family Fundraising Event yet.

Anyone affected by Juvenile Myositis (JM), including Juvenile Dermatomyositis and Juvenile Polymyositis, is encouraged to attend.

New this year!  More sessions that YOU asked for, more teen, tween, and children's activities, more time to interact with prominent physicians and researchers, and Cure JM's Walk Strong to Cure JM!

REGISTER NOW

 


Location

 

The Cure JM National Conference will be at the Lakeway Resort and Spa, in Austin, Texas. Austin is the Live Music Capital of the World with family-friendly activities for all ages.

Family-friendly Austin, Texas is the site of the tenth Cure JM National Family Conference

Click here to book your hotel room and receive Cure JM's discounted rate.  Rooms must be booked from your computer, not from a mobile device.

Rooms can be booked over the phone, please call 800-525-3929 and identify yourself with the Cure JM conference group block.

We expect the hotel to sell out so please book your room early.

Cure JM's discounted hotel room rates are:

  • 1 King Bed Room $135
  • 2 Queen Beds Room $145

Rooms rates are subject to tax and a $13 per day resort fee.  

For assistance or questions while booking your hotel room, please contact Kaitlyn Herring at kaitlynherring@lakewayresortandspa.com or 512-261-7348.

 

The Lakeway Resort and Spa features a 3-pool swim complex complete with water slides.

Make it a Family-Fun Vacation!  The Lakeway Resort and Spa features:

  • On-site restaurants
  • Resort swim complex, featuring three pools, a hot tub overlooking Lake Travis, an swim-up bar, and a children's pool with water slides (open weather permitting)
  • Golf course
  • Full-service spa
  • Free wireless internet
  • Fitness center
  • Shuttle service into Austin
  • A Kids' Fun Zone with inflatable bounce houses, arts & crafts, basketball arcade, games, ping pong, air hockey, toys, billiards, and pinball.  Cure JM kids and teens will enjoy complimentary time in the Kids' Fun Zone!  More information below on the conference Kids' Fun Camp.
  • Conference Rooms with large porches where families can gather and socialize before and after the breakout sessions.  Many of the conference rooms also enjoy a stunning view of Lake Travis!

 


Schedule

 

Conference activities run from Noon on Friday, February 17, through Noon on Sunday, February 19:

  • NEW! At Noon Friday the conference begins with small group breakout sessions on a variety of topics of interest to Cure JM families.
  • Friday evening features a casual meet-and-greet reception, including complimentary appetizers, and social time to connect with other families.
  • Saturday, family members will participate in small group educational sessions and connect with other families, see session list below.
  • Saturday, all participants are also invited to attend a General Session with prominent JM researchers and physicians who will give an update on the latest in JM research advancements and answer audience questions.
  • Saturday evening will conclude with a recognition dinner and award ceremony to celebrate the collective achievements of the Cure JM community. The event is always fun and inspirational, a highlight of the weekend!
  • NEW! Sunday Morning Walk Strong to Cure JM! Cure JM families will come together on Sunday to cap off the weekend with the Walk Strong to Cure JM family fundraising event.  All families are invited to participate in the games, activities for kids and teens, food, fun, prizes, and a Family Fundraising Walk! Families attending the conference will sign up for the walk when you register for the conference.  (more details below)
  • Sunday Morning Austin Marathon and Half Marathon. We invite all runners to join Team Cure JM at the Austin Marathon and Half Marathon! Register here for the Austin Marathon. Friends, family, anyone is invited to join Team Cure JM!  IMPORTANT: To receive your free Team Cure JM T-shirt all runners must also register here as part of Cure JM's Marathon Team or email conference@curejm.org. Running is a fun way to connect with other Cure JM families and supporters and raise funds for JM research!

 


Grandparents and Extended Family Members

 

The National Conference has special sessions for grandparents, extended family, and caregivers.

Grandparents, and extended family members are invited to attend a special session focused on the special role that grandparents play in their families and the JM community.

 

This session will talk about resources and support for Cure JM grandparents and ways that grandparents and extended family can get involved in Cure JM.

This session is hosted by the Cure JM Grandparent Network Representatives.

 


Tween / Teen Activities

 

Teens, Tweens, and Young-Adults will enjoy their own activities while the adults are in the educational sessions, including:

Cure JM teens, tweens, and siblings socializing during the photography workshop at the 2016 National Conference.

  • Teens & Young Adults: Support and Self-Advocating (JM Teens Only, 14+) 
  • Transition to Adult Care Workshop (targeted toward JM parents, JM Teens 11+ and Young Adults).
  • NEW! All Teens Art Workshop (for JM teens tweens, & siblings).
  • NEW! All Teens Multi-Media Workshop: Podcast and Videos (for JM teens, tweens, &  siblings)
  • NEW! Poetry Workshop (for JM teens, tweens, & siblings)
  • All Teens Hands-on Photography Workshop (for JM teens, tweens, & siblings)

 


Walk Strong to Cure JM

 

NEW! Walk Strong to Cure JM! 

 

The National Conference and Family Fundraising Event gives families an opportunity to connect with other JM Families.

Cure JM families will come together to cap off the weekend with the Walk Strong to Cure JM family fundraising walk on Sunday Morning. Families attending the conference will sign up for the walk when registering for the Cure JM Conference.

 

The walk will feature games, activities for kids and teens, food, awards, and a family fun walk. It's a fun and memorable way to end the conference weekend!

Walk Strong to Cure JM allows Cure JM families to raise funds by walking in honor of the special person in their life that is fighting JM.

As part of the walk, we highly encourage all families to fundraise at least $250 each -- or more!  By fundraising, YOU will move us closer to a cure. During the walk and the months leading up to the walk, the JM community mobilizes and is propelled into action. You will develop a strong sense of camaraderie even before you arrive at the conference!

Form a team and raise funds for JM Research at the Walk Strong to Cure JM family walk held on Sunday at the National Conference.  As part of the walk we highly encourage all families to raise $250 each - or more!

How do families raise funds as part of the walk? By forming a Walk Team! A Team is a group of people who join together to support Cure JM and walk together at the event. A Team can be made up of family, friends, neighbors, classmates, coworkers, a school, friends, anyone!

 

A Team Captain (typically a Cure JM parent, patient, or Grandparent) will encourage others to join the Team, motivate them to reach their fundraising goals, and keep them engaged throughout the process.

Participating in the walk is a highlight of being on a Walk Team, but if your friends and family aren't traveling to Austin, they can still be on your team "virtually"! The more people on your team the better and the more fun your Team will have along the way! More tips & tricks on forming a fun walk team coming soon.

 


Kids' Camp

 

One of our most popular attractions is the Kids' Fun Camp, for children age 3-10.

The Kids' Fun Camp will be supervised and facilitated by a team of elementary school teachers so that caregivers can attend the educational sessions.

Kids' Fun Camp will include: 

  • A fun-filled day of activities and games with a Star Wars theme; activities are designed for JM kids and siblings ages 3-10, of all abilities
  • A special musical guest who will lead the kids in music activities -- kids will be invited to perform what they have learned for the parents & physicians in the audience
  • A wide variety of crafts, games and fun activities to play with the new friends they make at the conference 
  • NEW!  Cure JM kids, teens, and siblings will enjoy complimentary time in the Kids' Fun Zone featuring inflatable bounce houses, arts & crafts, basketball arcade, games, ping pong, air hockey, toys, billiards, and pinball.

The Kids' Zone includes inflatables and a full arcade.


Now is the time

 

Engaging our JM families, physicians, researchers, and patient advocates is critically important to driving greater progress with JM diagnosis, treatments and ultimately a remission or a cure for all JM children and adults.

Within the Cure JM leadership team, we often talk about the importance of JM families taking action to increase the chance for a cure and now is that time!

JM families can gather together in a family-friendly location like Austin, Texas and participate in the educational and fundraising efforts. These efforts will make a difference.  I hope you can join us!

Learn more about the conference here or contact us at conference@curejm.org

See you in Austin,

Kristine Alderfer

Kristine Alderfer
Cure JM Board of Directors
Chair of the National Conference Committee

REGISTER NOW

 


 

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